Help Brain tremors inside my head causing severe sleep depreviation

i can almost garuntee you its anxiety,

iv never been axnious in my life. but as stress has endured in my life it has done things iv never expoerenced before .

you need to go to bed calm. drink some calming tea, lavender in your bath.

maybe go for some relaxtion massage therapy.

the only other thing that can cuase this that i have read is if you are on or having withdras from certain meds

hope this helped

oh btw, i didnt realize my profile says proud mom.

i am in fact a 31 yr old man, father of 3 and married.

Cheers

I think this is an endocrine disorder that affects neurological processes.

i found your post when i was googling , trying to find out whats wrong with me.

i jerk awake when i have just drifted to sleep due to what i call a wobbly feeling in my head. it feels as if i will start seizing if i dont jerk myself awake and sit up (ive never had a seizure its just what my brain instinctively thinks) .. the feeling is scary because i dont know what it is or how to prevent it.

i saw you say you take synthroid, i do as well.

im unsure what else we have in common besides that. I am a 27-year-old female and I take Synthroid.

I end up taking a small dose of Valium when this happens to me about 3 times a month because it sends me into a panic. i do not take valium otherwise, only to get myself calmed down enough to ignore the wobbles.

i seem to do better when i go to bed early, about 8:30-9:00, and reducing screen time and using the blue light filter on devices.

not sure if it helps for real or only because i think it does.

i have noticed that its worse during hormone changes: before, during, or after my period. sometimes during ovulation.

i will be following this post to see if theres hope, or if this can be identified..

I have the issue for over 18 years but only on the left side of my body. It appeared to start overnight after lifting some very heavy items that put a lot of pressure on trapezius and neck muscles. Mostly I feel it in my left head and neck/shoulder, and the left side of face and temple area feels a bit numb. I only feel it when my body is completely still. As long as I am moving I don't feel an issue. Brain scan, carotid arteries checked. MRI of head and MRI a few times of my spine including one just a few weeks ago but they reveal no issue in the Cervical area. Nothing so far indicates any possible cause of this problem. Whether it relates but I have constant Tinnitus and have had for a very long time.

Originally I was prescribed quite high doses of Gabapentin + Cloxazolam. I quickly stopped the Gabapentin as I could not function during the day. I continued with just 2 and then 1mg of Cloxazolam at night for around 16-years to aid sleep. I eventually stopped the tablet a few years ago and for some time I felt quite reasonable but sleep was still an issue. Now for the past couple of weeks at the suggestion of Neurologists I am taking 10mg Amitriptyline which doesn't do much at all, if anything, but perhaps its too early to get the full effects.

The two neurologists seen recently seem to think its all stress related but I just cant accept that I have stress every day and night for 18+ years. Just an example this afternoon - I was sitting quietly feeling relaxed and then started dozing. After about 30 minutes I came to only to feel the left side of my head was tingling and with a strong buzzing/tremor feeling. After a short while it to tends to calm down a little but doesn't completely leave me. Of course the main issue is at night where sleep is disturbed and particularly upon waking.

I have to say that at times I feel the internal tremor can be felt on my left thigh/waist area as well as my head. Now that really leaves me confused as to where this all originates from and why on one side only. The neurologists do not think this is a medically serious issue as no visible tremor can be seen, hence they can do nothing but give some kind of medication to alter the mind, such as Mertazapine, Gabapentin, Neurontin, Amitriptyline etc . God knows what the answer is as I cant find it.

I have to say that in my opinion I was better off taking Cloxazolam which I understand is a muscle relaxant and which is only available in Portugal, Canada and a few other countries. I think its very similar to Diazepam. They say this is addictive but from my experience I took the medication year after year with no conscious side-effects and no desire to increase the dosage, but at least I was able to relax and sleep. Here in the UK the Doctors refuse to prescribe anything similar to the Cloxazolam but are prepared to prescribe Ambien (zolpidem) and the Amitriptyline, both of which appear to really help. I could write a novel on what other measures I have taken but I doubt you want to read any more.

34 male

I've started having many of these same symptoms begin shortly after a wedding I attended in a very outdoorsy area. (~aug 18th 2021, about a month ago)

Primarily started with just muscle twitches (fasciculations), progressed to daily jitters, sometimes nausea or general malaise, and internal vibrations that would occur across the whole body, including the head. The vibrations were sometimes strong enough to be visible or felt (particularly facial muscles), and rarely my right hand fingers would contract inwards by themselves (had to fight to open them again, but only lasted seconds at a time). The internal vibrations in particular are the worst symptom as they interrupt what I'm concentrating on and are difficult to ignore. It's like some kind of mild electroshock therapy. I would also get intense shivering and tremors while trying to sleep, and these would also wake me up, and the shivering was usually accompanied by excessive sweating. I'd shift and turn in bed like my body was unable to control its temperature, going from too cold, to too hot constantly. I would even have weird sensations like hot flashes pulsing through my arms, and early on some pain in the ulnar nerves of my elbows. Some of the early nights in this it almost felt like I was having fever dreams, but it was not accompanied by any actual fever after measuring temperature.

At its worst it was all these symptoms, plus very strange feelings of uncoordination and weakness particularly in my right hand, but without discernible loss of coordination or strength. All the symptoms also seem to get worse the less deep sleep I get.

When these symptoms were at their worst, I was not able to get more than 1-2 hours of pseudo-sleep per night. I went to the ER 3 times, the last time with no sleep over 4 days, and every test done showed me to be perfectly healthy - CT of brain/spine, ECG, chest x-ray, 8+ blood tests, urine test, physical tests of my reflexes, eyesight, and ability to move, plus I had an MRI done a year prior that also showed no issues.

Again, these symptoms all seem to get substantially worse the less sleep I get.

The first ER visit, the doctor referred me to a neurologist. I don't know what neurologist, or when. Apparently I'll 'get a phone call'. All attempts to find out more were met with, "can't help you, its a black hole, they'll call you in 2-4 weeks probably". The second ER doctor assumed I had covid (I had taken a covid test that day - the next morning it came back negative) and sent me home with a recommendation to take tylenol and advil after doing chest x-ray and ECG and sitting me in the covid ward the entire day. The third ER doctor took my symptoms more seriously, did a CT of brain/spine but only determined the issue was "anxiety" and sent me home with 6 ativan pills.

My family doctor also agreed with the anxiety assessment and prescribed an additional 10 ativan (lorezepam) to help manage the 'anxiety'.

I asked for hormone tests, and sleep clinic testing, EEG, and was flat out denied these by both my family doctor and the ER doctors, because my issue isn't "chronic".

I've been able to get some semblance of normal sleep since going to the ER, I'm still working through the ativan; it helps but not nearly enough - it seems to lessen the sleep tremors but not get rid of them. I bought a fitbit and began tracking my sleep habits and found that despite sleeping for 9-10 hours a day, I'll lose almost 2 hours a night to waking up from my symptoms. If I don't get enough deep sleep, my symptoms tend to worsen the following day.

I have been getting 15-30 minutes of exercise on a bike almost daily.

Caffeine seems to make the symptoms worse (with some lag time) so I've stopped drinking coffee/pop

Fast food (mcdonalds/kfc) have both preceded bad nights where I got little sleep, so processed food may be a factor.

The symptoms come and go through the day. Some days I am entirely normal, and some nights the tremors are almost gone and I can sleep through them. Other days it gets worse.

My best guess is that I'm suffering from some kind of hormone imbalance, possibly lyme disease. It might be an overactive thyroid (but ER blood tests should have shown that?). It seems unlikely to be permanent neurological damage because normal functions do return, but maybe struggling and failing tissue somewhere?

It's frightening to go from otherwise entirely normal and healthy to just, almost literally overnight, suddenly having the kind of symptoms that make me feel like I've got some serious brain degeneration disease that is going to kill me.

I'm not really sure what I'm going to do once the ativan I have run out. I don't think any of the doctors I've seen actually take this as a serious issue.

I want to have an overnight EEG and blood pressure test done, I want to get testing for lyme disease, I want to get blood tests for my hormone levels, I want to go to a sleep clinic in case its caused by or made worse by sleep apnea (which my father has), I want to try using drugs like gabapentin and amitriptyline instead of lorezepam that seem like they better target my symptoms, but I seem to simply be stuck in medical hell where nobody I talk to actually considers me worth trying any of this on.

I'm thankful that I found this thread at least. It's helped assured me that not only have other people gone through these symptoms as well, but it doesn't seem to be fatal, just a serious negative impact on quality of life.

I appreciate those of you who've replied in this thread later on after experiencing your symptoms and describing how it has progressed/gotten better and what you felt contributed. If I get better and have this disappear for a few months I will try to come back and do the same.

did anyone have liver issues when these episodes were going on?