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I've decided to jump on here and see if I can get some advice as I am feeling depressed from being so sick for so long (being in chronic pain)
About 4 months ago, I fell sick. I was fine one day and the next I was bed ridden for 3 days with a nasty fever and swollen glands. The doc diagnosed me with Playringitis.
I began to feel a little better but the swelling of my submandibular gland continued to get worse. Between working, Xmas and moving house I didn't have a chance to get to the doctor.
In January the pain started to become unbearable, now in my new house I decided to book in with a GP. I was getting to the point of not being able to complete normal tasks like working and most importantly sleeping. This led me to become completely frustrated and upset.
My GP decided to do a blood test and a Panoramic X ray on my teeth and Jaw. He decided to do this as I have a history with TMJ which has not been properly treated. I also had a fall in 2016 when I hit my head when I was out on a bar (I was pushed) and I felt that maybe that was contributing to the pain. I explained that my right submandibular gland is extremely swollen and was experiencing extreme pain.
My blood results came back and the doctor said my red and white blood cells were fine and that my bone structure and teeth didn't look abnormal to be causing so much pain. After 3 visits and 2 seperate scans my GPS conclusion was that my 'Anxiety was causing the pain and swelling. Now I hit the point where I felt defeated.
I booked with with my dentist who felt the swelling in my submandublar gland and referred me to an Oral specialist. With a 3 week wait and determined to get some answers and relief I decided to book in with a second GP after I had looked on Google and found many possibilities of what it could be causing the swelling and pain.
My symptoms at this stage were extreme fatigue, swelling in my submandibular gland, a constant fever, irritability, jaw ache, ear ache and swollen lympnodes. Along with a Chronic Pain. I asked my doctor to test me for Mono. He was quite shocked my prior GP only tested my red and white blood cells. He decided too test Iron, Blood cells, Thyroid, CMV and mono. Along with Urine.
Iron - Ok!
Blood cells - Ok!
CMV - Negative
Mono - Positive for 2 Antibodys
VCA IGG and EBNA IGG - Positive
VCA IGM - Negative
Urine - mild proteinuria noted.
Wow finally an explanation. I got these results on the 7th of February and I decided to finally take a week off work to get some rest. My specialist appointment was on the 14 of February.
The specialist noticed the extreme swelling in my Submandibular gland/Lymonodes and the pain and referred me to have CT Sialogram to get checked for blocked ducts and stones.
Due to the radiologist not being able to contact my specalist, he was unsure what sialogram to complete so he decided to do a CT scan of the Jaw/Neck and if anything came up, he would complete a physical sialogram. The radiologist said the scan showed swelling but probably not due to a stone and not worth doing a physical sialogram.
Soo, at this stage I am waiting for a call from my specialist and my next appointment on the 7 of March. I know I have been diagnosed with Mono and that the healing process can take months, but the cause of the pain has always been directly under my Jaw in my submandibular gland and the pain has not at one stage improved and to this day I am still in chronic pain. I am ready to give up. I can't handle to pain anymore and I struggle to sleep, rest, work and be a normal person.
I suppose, I want to know other peoples stories, Is it the mono causing the swelling for this long? Or this there really something else going on? I am starting to feel crazy and depressed. I just want some relief. I have had constant pain relief to try and help but medication like Panadine forte which is what I am prescirbed is beginning to not give much relief. I am taking Viral force, Vitamin C, Vitamin B and Magnesium to help recover.
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