HELP HELP HELP !!!!!!!
Posted , 5 users are following.
HI, I have posted on this forum before, i have TRIGEMINAL NEURALGIA, a very very painful illness, and that is what i suppose it is an illness. As i have said it started many years ago with pains in the right side of my face, thinking it was tooth ache i many treatments at the dentist.When this did not work i had the nerve cut on the inside of my mouth on the upper jaw. Brilliant this worked .... for a while...... Another op again this worked for a while then went for a third op but this time he couldnot touch my face to give the numbing injection. With this i went to see the Neuralagist FANTASTIC i was told what illness i had. I was told to take Tegretol 400mg and Neurontin 600mg FANTASTIC no pain. I could eat talk clean my teeth i was a new person !!!!!. Then the pain came back after about 8 or 9 months. So i upped the dosage and the pain went after about 2 weeks i lowered the dosage to what i was on before great. 4 months later i am at the stage i am now. pain on the whole side of my face and going up the right side of my head just behind my ear, I find it difficult to eat and talk. It is painful to brush or comb my hair.
The Doctor did say to me that if the tablets did not work then i would need an operation, this being on my brain!!!!!!!. Does ANY ONE know anything about this op. I have been told that it could leave me deaf, blind or not even come out of the op atall ??????? PLEASE can any one give me any info on this !!! ????
0 likes, 5 replies
harleygirl
Posted
purplewheels
Posted
I hope that you can get the help that you need.
Pain that has gone on for more than 6 months is considered to be Chronic Pain.
Raye
Posted
Raye.
hazeyk
Posted
My mum had trigeminal neuralgia for many years. She was in and out of hospital undergoing many operations on the nerve inside the mouth. She had the operation on the nerve in the brain and was left with the side of her face being numb. She always said this was a small sacrifice for getting her life back. She suffered for 12 years and though the survival rate was 30% (40 plus years ago) she really had no other option as medication was having no effect. I wish you both well and a speedy recovery
Raye
Posted
Many thanks again
Raye