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HELP! Hip/knee pain (+ other symptoms)

Posted , 23 users are following.

lippylinz
lippylinz

I recently posted on here about my 14 year old daughter, she has been suffering from pains in her hips and knees for a few months now. Some days the pain doesn't bother her, other days she can hardly move! There is no pattern to when/why the pain occurs, she constantly limps (even on days when she doesn't really have any pain) Her leg also seems to go into spasm leaving her stuck to the spot for a few minutes. The pains started in her left side, but soon started to affect the right side (way worse than the left side) Her right hip bone also seems to jut out further than the left. We have seen 2 doctors, the first said it was growing pains, the second sent her straight to hospital for x-rays which came back normal. It seems to be getting worse, she used to struggle through the pain and get on with everything (this has always been in her nature) but it is now having more of an affect on her day to day life. She can hardly ever go out with friends, has had to take a letter to her school as she can't cope with P.E anymore, and has been unable to take part in her dance classes. She did try at her dance class on Monday as she said her hips and knees felt ok, but her teacher ended up pulling her out. I was there and it was painful to watch her! Every move seemed to be such a struggle for her! Even lifting her arms and everything! She just looked knackered! A few of the other Mums were also commenting on how she looked! Anyway, since her last appointment, we have noticed a few other little things, she has developed 2 strange roundish indentations on her legs, one on the side of her left thigh, and one on the front of her right thigh. She gets no pain if I press on them, but it feels strange! Very soft, as if there is no muscle behind them. The muscle (well.....I THINK its the muscle) on the bottom left hand side of her back also seems to be bulging out. She has also complained a couple of times about discomfort in her chest (she said right from her shoulders to the top of her tummy) and is getting puffed out more easily than she normally would. Everything just seems so much of an effort for her. Anyone got any ideas or advice????? Its stressing me! I called for another appointment to see the doctor, but they can't fit her in for another week.

1 like, 36 replies

36 Replies

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  • esther_de
    esther_de

    Posted

    Hi lippylinz,

    It so horrible that you still don't know what is really wrong with your daughter. It is shocking that your doctor hasn't been able to identify her problem and refer you to a specialist. Some of her ailments may be just that and not apart of the bigger medical issue.

    A young girl should be enjoying her youth and not tied down with serious medical problems. I hope there is a real 'Dr House' out there who would be able to help you. You are a great mother. Sending you all my support. Maybe you should contact all the major medical research schools in the world to see if they may take on your daughters case.

  • lippylinz
    lippylinz

    Posted

    Thank you. Your message is much appreciated!

    I just don't know what to do next! I feel almost to embarrassed to go back to doc's with her as they make me feel I am some paranoid Mother! But also worried that I could be leaving something to get worse!

    She has even said to me a few times "Mum, how much pain would I need to be in to go to hospital"? I will say to her "Most people would have to be in an awful lot of pain or seriously ill before they went to hospital. Why"? She will just reply "Its ok, don't worry about it, we will just leave it just now". She has always been the type of girl just to "get on with things and not worry about them. But I almost feel like she is wanting me to say "ok, lets go to hospital"! But I don't want to feel I am wasting the time of my local hospital (or them telling me just to go back to my doctors

    • mary95088
      mary95088 lippylinz

      Posted

      I was looking how to help my sciatica and read your post. I too am very tall. Do her joint pop or move weird. Look up ehlers danlos. I have it but its Very rare. But health care for it in the UK is much better than the US. Do some research on it. All her symptoms sound familiar. 
  • hannah79031
    hannah79031 lippylinz

    Posted

    Hi, I'm really sorry to reply to an old post but... Have you found out what's wrong with your daughter? I'm experiencing exactly the same right now (I'm sixteen) and I've been so busy with exams/ results day that I've kind of ignored it and got on with more important things (I know my health is important but I'd rather not fuss)- but my hip and knee and hurting so badly today I can't walk sad
    • steph98
      steph98 hannah79031

      Posted

      Sorry to reply to this so late, but I am experiencing the same thing as you. I'm 16 and some days I will be fine and have no pain in my hips or legs, but other days I will be in agony. It first noticed this when I used to do kick boxing, as I was having more difficulty doing some of the things that I used to do. When my mother noticed it, she thought that it was best to go to the doctors because it was causing pain, but only minor pain at the time. They gave me several rounds of physiotherapy which only caused me more pain, but once again they said it was growing pains and said they would go away. Over the years it only got worse and I didn't go out with my friends as much, because I could only walk for a little while and would have to stop for 10 minutes, but I would still be in pain. I thought it was because I am very thin and a fussy eater even though I eat all the time, but I think there is a possibility that I am anaemic because I suffer from headaches and get spells of dizziness. Until recently they said it was still growing pains for 3-4years, but I was referred to an osteopath for an xray and an examination on one of my knees. The xray came back fine, but the osteopath said I had a problem with my legs which would never correct itself naturally, so they told me to put up with the pain or have an operation. To this day I still don't know what is wrong, but I am about to go on the waiting list for an operation where they have to break both of my legs to fix them back into the correct position, meaning that I probably won't have my operation until 2016. I'm hoping it won't affect my performance in my A Levels. If you have any information on what this could be or if I have given you an idea of what you could be experiencing, please send a message back. Much appreciated smile
    • ebony43021
      ebony43021 hannah79031

      Posted

      Hey, I'm 18 iv been experiencing hip pain in my left hip for a few months but it wasn't regular only recently the last 3 days it's come on quite painful and for the past 2 days my legs have just ached none stop. I can't stand for more than 5 minutes without them hurting. Iv also become really breathless if I go upstairs to the loo I'm out of breath and I only weigh 8 and a half stone. Iv been getting terrible headaches and going dizzy I hate it. Iv read that it could be a kidney infection but my urination seems to be fine to me. I think I'm going to see my gp about it and find out what it is hopefully I can get and answer and inform you.
    • marie44382
      marie44382 ebony43021

      Posted

      It's called Avascular Necrosis I have it in my right hip. It becomes very painfull after awhile. If u have any questions about feel free to ask me
  • tupidnao
    tupidnao lippylinz

    Posted

    I dont know if your daughter has already found a diagnosis but i hope this helps.

    If your indentation increase or pain starts then you should show to a ortho surgeon and get ultrasound of your thigh if there is any abnormal fluid collection or ant fatty tumour.

    You should check for diabetes insipidus. This might be cause of your daughters increased thirst and urination.

    You should also check if the length of your daughters arms spread out is longer than the length of her body. This might suggest Marfan syndrome.

    You should also go to the orthopedic to check for scolioais and flat foot because the jutting hip bone might be caused by scoliosis. Flat foot is just in case. If the doctor jist looks at your daughters feet and say there is no flat feet, search for flat feet firat before you go to the doctor and tell him there is flexible flat feet where the feet do not look flat but will be flat when pressure is on it.

    Ypu should also ask the doctor to check if you daughter has Miserable Misalignment syndrome. this causes knee pain and the leg to turn inwards.

    I hope this info helps your daughter the obtain the right diagnosis!

  • tupidnao
    tupidnao lippylinz

    Posted

    Oh and you can also search for sjogrens syndrome. AOme of the aymptoms seem to match the condition.
  • HOTpicks99
    HOTpicks99 lippylinz

    Posted

    If i was you i would gp back to your gp and demand your daughter have a mri scan and to see a rheumatologist it doesnt sound like growing pains its more serious cos i have severe pain in my hipsknees and hips and im having ultra sound scan done on my fingers on morphine for pain and then go back to see the rheumatologist
  • marie44382
    marie44382 lippylinz

    Posted

    Hello hope this info helps. I was just Diagnosed with AVN of the Right HIP last year. It's Avascular Necrosis it usually effects a lot of TEENAGERS. I'm 30 but it can happen to ppl up until 40 yrs old.

    At first I thought it was just sore muscles but after a few weeks the pain got so bad I couldn't even walk. In it's beginning stages it will NOT show up on a X-RAY. So it is very important that you ask the DOCTOR to do a MRI. And they MUST look for AVN. This BONE DISORDER is over look until it's in it's far stages if the Doctors are not looking for it.

    I started with pain in my groin area that felt like a pulled muscle then got very worst. It went into my HIP BONE then down to my KNEE. The pain also effects my other Hip & Knee at times. AVN could go into both Hips but sometimes the pain goes to the other leg because your over using it due to the pain in your injured leg.

    If you find out you do have AVN the first thing you need to do is start taking Vitamins, Go to Physical Therepy start using a TENS MACHINE. This helps increase the blood flow to the area. Also a Heatind Pad. And the Most IMPORTANT GO SWIMMING. I took a AQUASIZING CLASS. That improved my range of motion and helped my pain a lot. Hope this info helps

  • Jay0101
    Jay0101 lippylinz

    Posted

    Hi, I know this is a bit late but I wanted to know if you found out anything about your daughter? My daughter is 7 years old and has just started having the same issue a week ago. I am extremely concerned and the ER is not helping, although I do have an appt with her primary. Please respond if you see this. 
  • adam1986
    adam1986 lippylinz

    Posted

    Hi there was reading ur post bout ur daughter and I too suffer with the same problem, locking joints,stiffness,sharp pains in the hip an knee, and have done for the last eleven years and seems to be worse wen the weather gets cold or the pressure in the air changes I've been to see different doctors who just palm me off with painkillers, which just mask's the problem, I've been told it was growing pains which I do not believe as I'm now 28 years old, they all tell me different things so have come across ur post and have been doing a lot of research myself an the only thing I can relate it to is osteoarthritis and can be found in young adults, so I'm going to the doctor for some tests as I too am at a lost cause as to wat the problem is hope this helps, I will post bk once I can find out more
  • mikayla07211
    mikayla07211 lippylinz

    Posted

    Hello. I am also recieving similiar pains. About a week ago my mother had to buy me a knee brace because my knee hurt to walk on. The pain comes and goes and now for two days I have been getting hip issues. I have known I don't have a well back. Could my back be the cause? I can't bend over for long before it gets sore and painful to walk. The knee brace hasn't done much. It relieves pain for a short while, but I constantly have to take it off because I feel like it's suffocating. My knee looks a little puffy, but not much. is this kind of like what's happening to her? (P.S I am 15 years old.)
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