HELP! Hip/knee pain (+ other symptoms)

Hi lippylinz,

I have been experiencing the same pain as your daughter. My hip has been hurting for 3 days now and I struggle to walk and run. I haven't been to the doctor's yet. Also, I hope your daughter is better now seeming as this was over a year ago. If not, hopefuuly, she'll be better soon. I would be very happy if you could tell me what has happened to her and if it is something I should be worried about. 

Thank you!

If this is still happening dont go to the doctors i am a 15 year old girl (this happened when i was 14) and i have slipped capital femorAl eyphsis (SCFE) and my doctors said its was growth pain abd muscle pain untill my mum pushed for an xray and mri scan and they found it and i needed screws in my hips. Most symptoms match

Hiya, I needed to reply to this as when I read it my heart poured out to you and your daughter and the stressful time you are going through. My son who as symptoms just like your daughter was diagnosed with Joint Hypermobility 2010. His symptoms got worse when he joined secondary school year 7. He his constantly in pain with knees, hips, wrists, ankles and feet. Bone pain on and off in legs. Sometime groin pain. He was told he would need to keep taking laxatives as he started to become constipated and he had never had constipation until 2014 when he was given antibiotics for water infection that was never a water infection. I was told 2 years ago when he was getting viruses back to back that he would have to ride it out. This was because it was viral not bacteria. We had to go back again and again due to constant headaches, eyes were deteriorating child cannot see properly without glasses on. Was told he had stomach migraine. Migraine all different types of migraine. Which was total rubbish. He gets puffed out easily. He was told he needed to lose weight.

I have been to see Diabetic consultant, Kidney Consultant who found incidentally a cyst on left pole of kidney. After a scan as we thought he had kidney problems before a private consultant found it was his hip.

He was seen an allergy specialist for nut allergy only diagnosed two years ago. Consultant could not believe he was still alive. Thank god for the anthistamines.

He as seen neurophysiologist for epilepsy as he kept blanking out and not remembering things and still forgets things. Results came back normal but they would as these tests should have been done over four or five days.

He his having physiotherapy and ad been told by rheumatology that it will be a long term thing.

He was referred to Hydrotherapy 5 weeks ago as they said it would help but his swimming as deteriorated since last year and he almost drowned in the pool because his arms and legs could not cope.

I now have to get in contact again with Rheumatology as no one as taken any xrays of his bones.

Paediatrician said it would not be advisable as it would bring up all sorts of things. Very annoyed but may have to go privately.

He as one more appointment with Endocrinologist who state it may be an hormone problem.

I personally think my son also as a nerve problem.

He his constantly burning up at night. Then sometimes his body goes cold and feet very blue. He also cannot feel the heat on his skin when showering and also as developed Uticaria. At first he thought they were pain rashes.

Look at Hypermobility website as you will find a lot of information. There are also many forms of Hypermobility.

Long and short of it you need to see a Paediatrician and ask to be referred to Rheumatology. Not that anyone cares much.

Talking to other mothers at Hydrotherapy. It will be a long battle. Not just medically but also school. The Rheumatologist my son is under won't make a diagnoses until he gets physio report and Physiotherapist cannot do so unless they cannot go any further with him.

I have filled out an EHCP form and a EHC form for him in order to get help this will include many professionals from relevant agencies.

My gripe is my son was told he would have to live with the pain. Which he is doing quite well. As he his sensitive to many medications

Another thing my son had a lot of blood tests done. All with different things showing and never consistent.

Blood readings do not count for much and even though showed a trace of Rheumatoid Arthritis they dismissed it.

Argument now is why is he in pain. Joint Hypermobility is not suppose to cause severe pain. Benign Hypermobility does. Ehlers Danlos Syndrome and Marfans Syndrome have been mentioned by orthotics consultant, paramedics and NHS Direct doctors. I have had to call out emergency for my son lots of time. All they say it's muskeletol. Pain in chest, breathing. Joints popping out just by doing littlest things. Flat feet which does not help the hip. I am still fighting and fighting school with regards to attendance. It's going to be a long journey I am afraid to say.

Hope this helps in getting you started. Keep fighting and don't feel your on your own.

Hello lippy..have u tried yo find a chiropractor?? They the one who speciallize about our spinal cord and hip bones.. coz I watched it on youtube a guy whos in pain and can't manage to stand straight and walk well.. I hope this help.. goodluck..

How is your daughter?!?