Help, I haven't eaten solid food for months

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I started having problems, chest pains and excessive burping/diaphragm spasms back in June this year. I was put on lansaprozole 2 a day and seemed to be getting a bit better. But then I was cut down to one a day and because I was on a whole list of other meds I tended to forget my lansaprozole on a lot of days. Soon my symptoms became so bad that I ended up in hospital unable to eat. They stopped my lansaprozole dead and said I had globus. A few weeks after getting out I ended up in again. They gave me a camera test and said I had mild gastritis and still can't decide whether a hiatal hernia, thickening of my esophagus or a harmless indent in my stomach was seen. Anyway, that was in September. I was released from hospital on two lansaprozole and two rantitadine a day. I have slowly built up to eating mashed potatoes but not always and my swallowing problems I think have added a layer of fear which doesn't help my eating.

On Thursday I was called in for another stomach camera test (which turned out to be one my gp had ordered back in June and which the hospital doctors said they were cancelling). The result of that one were given to me right away and the doctor said that my stomach lining is really inflamed (the last doctor put that down as mild gastritis and didn't even tell my gp about t!), that there is a very raw patch at the bottom of my stomach and that basically I have reflux esophagitis. I'm assuming that means that my esophagus is inflamed also.

The issue is - I have been on the high doses of stomach meds since early in September and given the results of my latest camera test things inside my body have gotten worse, not better. On the first camera test they told me my esophagus looked perfectly normal and fine, now I have esophagitis. I am still not eating normally and I even have difficulty swallowing liquids at times. All of my meds are liquid form because I can't take pills, and I take them faithfully every day. The swallowing is a little better than it was before, but honestly I'm out of strength and patience for this now.

Does anyone have any idea why the stomach would be getting worse and turning into reflux esophagitis even though I'm on the meds? And is there ANY way to fix this? I will be 30 on the 27th of this month and the thought that I probably won't even be able to manage a slice of birthday cake makes me want to cry my eyes out. I also have a constantly swollen gland in my throat which suggests to me that I have some kind of infection but they have refused to give me an antibiotic even though it has been there for months. Bouts of tonsillitis and even tonsil stones are not helping. I just do not know what to do anymore. I also frequently have temperatures and have definitely developed a real fear of eating due to gagging and food sticking incidents.

Can someone please shed some light on this for me? I'm just about ready to give up!

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7 Replies

  • Posted

    Hi you sound very stressed to me that will make your symptoms worse try to be more relaxed when eating and in general as well I'm on a the same meds as you and had camera twice and barium swallows three times and I've been told i I make to much acid because of my very stressed 😩 life they could see the damage done to my esophaitis if were you I would try to eat a little more food I can eat fish jacket potato veg if soft some days it's worse then others but I live in hope of one day being able to eat anything I want it's better then it used to be but still limited as to what I can eat try Chicken breast cooked in foil on a baking tray and I do eat cereal for breakfast I have cornflakes with semi skimmed milk with a little warm water on them on drink water decaf tea but no fizzy drinks or coffe I also eat a plain biscuit rich tea I dip it in my cup of tea it gives me heartburn but not always wish I could be more help to you

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  • Posted

    Hi Denise,

    My camera procedure showed I had gastritis and hiatus hernia. However the only suggestion I was offered was meds. Upon researching my symptoms myself; mainly a choking cough and feelings that I couldn't take in air and so frightening on occasions I almost called an ambulance, my voice also had/has become huskies, I decided to help my gastritis through diet. It is quite bland and even though I still cough I am more than aware the symptoms are getting much better and thus gives me hope that I am on the road to recovery. I still have no idea what started my problems but have decided to look forward rather than back.

    I have also incorporated Probiotics yoghourt, capsules and take Enzyme supplements.

    I would certainly find ways to relax if you can as relaxation is important in the healing process as stress doesn't help, although hard not to be stressed with your symptoms I know. Try to have a positive mental attitude and like Gillian says try to eat small regular meals.

    Wishing you all the best with this and it will get better with diet, not sure if a total cure is possible but I am hopeful.

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  • Posted

    Hi Denise

    Don't panic cos from every consultant and gp I've ever seen stress anxiety make yr symptoms worse. It's so hard to do because your aware of pain and discomfort 24/7.

    I have Barrett's which means that acid comes up into my oesophagus and irritates the lining and has now changed the cells. This is s pre-cursor to cancer. It's good news that yr acid reflux hasn't permently damaged yr oesophagus. That's a positive. When you take the anti acid tablets they may control the acid but don't stop other stuff still coming up. There is a test to see if u have a weak valve at the junction of stomach and oesophagus.

    I have sensations of food stuck in my throat and have thought my glands are up. So I had a dilation of the muscle at the top of oesophagus this helped me but didn't last for long. An ENT consultant said that people with acid reflux can suffer with with problems high up as stomach contents irritate the lining sometimes known as globus.

    I think controlling our anxiety about it. And believing that this is just something I need to deal with and not panic

    Take care

    Jackie

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  • Posted

    Hi Denise

    I agree with Gillian, Susan and Jackie and I agree with you thay gastrointestinal tract distress is difficult to learn how to manage.

    You have said that you are taking a lot of other medications. This is where I would look first. Which of these medications are known to irritate the stomach and duodenum?

    I have had 6 blood transfusions because of gastrointestinal tract distress. I have had 12-15 endoscopies. And I have GERD, hiatal hernia, and I am awaiting biopsy results to learn whether or not I now have a Barrett's esophagus.

    When we experience severe gastritis, our behaviour modifies to protect the self...if I put nothing in, nothing can come back out. We develop an aversion...aversion is a natural learned response to unpleasantness.

    All medication is a bunch of chemicals. And the stomach is full of chemicals which breakdown and digest food and anything else we put into our stomachs.

    This is why most all medication is not to be taken on an empty stomach.

    Perhaps you can begin eating very small. Discuss two bites eaten 16 times per day with your gastroenterologist. Perhaps request a referral to a dietician who can help you plan nutritious meals that are easier to swallow and can be eaten over several hours. And perhaps your gastroenterologist will give you a referral to an anti-anxiety counselor who can help you learn how to overcome the learned aversion to food.

    May you have cake for your birthday...

    kind regards

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    • Posted

      Hi Denise, hope you'll recover soon from this. I feel you. How about trying base foods. You can start juicing fruits and vegetables that arent considered acidic. Or blending some of this like banana or avocado with some honey, coconut water with Chia seeds. I'm loosing patience everytime it's at its worst GERD. But then what I'm trying to do is starting it with my lifestyle. I seek help for this reason, and we really need to have lots of patience. I told my self that I won't let my work or any disturb my health. Coz it's all connected stress anxiety then improper diet there lifestyle changes where health is being compromise.

      I was looking for an immediate cure but I know there isn't. It's taking all these medications at its proper time at the same time taking step on natural ways of improving our health. It will be a long way but if it's for the better...

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  • Posted

    hi iv had dysphagia centre feb after having swollen glands snd bad tonsils. I was in hosp 12 days iv had every camera and test done iv seen speech therapy had all the Florence the test they said there's nothing wrong except I have thickening g if the larynx I still can't swollow I see ent I have pain in my neck where I keep getting g a swelling psin behind my ear and dry znd sore throat every day I'm trying to eat very madded food I choke and cough an throw up my dr doesn't care I'm getting pains in my chest my throats royalty hurts iv had a ultrasound on my neck and the swelling nothing showed as far as soon I no I'm in a state I'm under e n t I'm scared I'm going to choke to death .I'm fed up as well I'm 63 Xi lost over 2 stone not eating

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  • Posted

    Hi Denise

    It's been almost a year since you have posted this but I thought I would reply anyway. I hope you're feeling better by now however i must say that Medictation you're taking (and all the acid reflux meds don't work and this is why https://youtu.be/McXhHJ0rQug. Watch this video please. I have stopped taking all that crazy my ignorant doctor prescribed and went to organic grocer for fruit and veg and also supplied myself with : organic moringa tree powder (Google it please) , organic super greens powder , organic spirulina ( please look them all up for their benefits). I drink a mixture of all 3 every day (in a glass of water ). I also take probiotic supplement (which I add to smoothies)and drink hot water with organic turmeric power or just a fennel tea. I've been doing this for 6 days so far and the burping has stopped almost completely. I still can't take any solid food in but I'm feeling more energetic and healthy so my body can fight whatever this is in my body. I have also read about making my own organic sauerkraut from cabbage (plus salt but only pink himalayman one! ) as it has many benefits for digestion. I have ditched meat and dairy as those are stuff that make the ph of your gut very acidic. I have also ditched (for now) lemons oranges tomatoes and very acidy fruits to help my stomach. Since this is all a natural way of fixing your body it will probably take a while however it really helps with symptoms almost immediately so worth a try. I can't believe doctors prescribe PPIs as treatment because those kill the remaining acid in our stomachs which we need for digestion and fighting bacteria off. There are a few other videos worth watching so let me know if you want the links. I have been suffering for almost 3 months now and I'm absolutely devastated at how it ruins your life. I am determined to fight back and this way is helping . I do still have moments when I feel low at blonde very uncomfortable but those don't last as long because as soon as I drink the mixture of greens it seems to be extinguishig the discomfort. I have also tried silicol gel and it does help a lot so I have it in my fridge just in case.

    I hope I can help someone with my advice because I really understand how you all feel :-/.

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