Posted , 8 users are following.
I started having problems, chest pains and excessive burping/diaphragm spasms back in June this year. I was put on lansaprozole 2 a day and seemed to be getting a bit better. But then I was cut down to one a day and because I was on a whole list of other meds I tended to forget my lansaprozole on a lot of days. Soon my symptoms became so bad that I ended up in hospital unable to eat. They stopped my lansaprozole dead and said I had globus. A few weeks after getting out I ended up in again. They gave me a camera test and said I had mild gastritis and still can't decide whether a hiatal hernia, thickening of my esophagus or a harmless indent in my stomach was seen. Anyway, that was in September. I was released from hospital on two lansaprozole and two rantitadine a day. I have slowly built up to eating mashed potatoes but not always and my swallowing problems I think have added a layer of fear which doesn't help my eating.
On Thursday I was called in for another stomach camera test (which turned out to be one my gp had ordered back in June and which the hospital doctors said they were cancelling). The result of that one were given to me right away and the doctor said that my stomach lining is really inflamed (the last doctor put that down as mild gastritis and didn't even tell my gp about t!), that there is a very raw patch at the bottom of my stomach and that basically I have reflux esophagitis. I'm assuming that means that my esophagus is inflamed also.
The issue is - I have been on the high doses of stomach meds since early in September and given the results of my latest camera test things inside my body have gotten worse, not better. On the first camera test they told me my esophagus looked perfectly normal and fine, now I have esophagitis. I am still not eating normally and I even have difficulty swallowing liquids at times. All of my meds are liquid form because I can't take pills, and I take them faithfully every day. The swallowing is a little better than it was before, but honestly I'm out of strength and patience for this now.
Does anyone have any idea why the stomach would be getting worse and turning into reflux esophagitis even though I'm on the meds? And is there ANY way to fix this? I will be 30 on the 27th of this month and the thought that I probably won't even be able to manage a slice of birthday cake makes me want to cry my eyes out. I also have a constantly swollen gland in my throat which suggests to me that I have some kind of infection but they have refused to give me an antibiotic even though it has been there for months. Bouts of tonsillitis and even tonsil stones are not helping. I just do not know what to do anymore. I also frequently have temperatures and have definitely developed a real fear of eating due to gagging and food sticking incidents.
Can someone please shed some light on this for me? I'm just about ready to give up!
1 like, 7 replies