Help! I just turned 33 and has Lichen Sclerosus?

Posted , 10 users are following.

I just saw mine down there today and I was shocked by how it looks! I have to see it in the mirror because I've been suffering from too much itch and I'm not happy with what I saw. My entire major labia or where my hair grows and some part of my thigh is abnormally "white", skin is wrinkled and old looking it's uglier and there are a few red spots too. It's too itchy I can't help but scratch, which only makes it worst, to a point it bleeds and sometimes urinating is painful it burns. So do you think what I have is Lichen Sclerosus? Cause I looked it up in google earlier and saw pictures pretty similar to what my V looks like. I'm not sure if this has something to do with what I'm going through for over a month now, I've been having spotting/bleeding and I'm really scared and worried. I still haven't see a doctor because I'm scared and too shy she/he look at my V. By the way, I just turned 33 and a VIRGIN. I know I gained a lot of weight these past 2 years, I'm not sure if I'm having hormonal imbalance or if I am already at menopausal stage at my age! Seems no hope of marrying now that I have this condition 😭😭😭😭😭😭

0 likes, 14 replies

14 Replies

  • Posted

    if you soak in soda water it will help with the itching but make sure it's warm. plus they gave me slob for mine I use 2 times a day.

  • Posted

    you really need to go and see a specialist via GP referral to get a diagnosis, dont be shy and embarassed please get it seen too

  • Posted

    Please pluck up the courage to see your GP, they are kind and considerate and understand fully your pain and embarrassment.

    Maybe you can take someone with you? The main treatment is CLOBESTOL ointment, if you are experiencing pain GP can prescribe numbing gel . Warm baths help if urination is painful, also a warm bath before you apply the CLOB is also good. try to not wear underwear as much as possible. Always wear cotton underwear. I wish you all the best xxx

    • Posted

      Thank you for the reply. I can't imagine wearing NO underwear... Coz I've been suffering from spotting or mentrual bleeding for over a month now. I had to use a sanitary napkin or a pantyliner. But I make sure NOT to use napkin when I'm home from work. Wearing napkin irritates my skin although I'm using the cottony type.

  • Posted

    So sorry you are having to deal with this, and at such a young age......

    That being said, you do need to get a diagnosis. Not all OB/GYN docs are up on LS, and some don't know how to treat it. I suggest you google to find a specialist in your area and make an appointment.

    What you are describing sounds like LS. If that is true, you will be prescribed a steroid to use, and will be told to keep the area moist at all times. In the meantime, get some Cortizone 10 and use it morning and night on the affected areas. Use coconut oil or emuaid during the day. Get a spray bottle and spray water on the area after you urinate. then moisturize. Do this everytime you urinate. It will take time to get this under control, but it is controllable!

    Wear only 100% cotton underwear and try not to wear anything other than cotton clothing. The area needs to breath to heal.

  • Posted

    liez, having LS doesn't mean you are in menopause. Younger people also get it (even children), though the majority are older. Are you still menstruating? If so, you are not menopausal. If you are not, you could be having hormonal irregularities and need to see a gynecologist.

    As others have said, you have to see a doctor in order to be properly treated. Doctors look at all body parts all day long. There is no need to be embarrassed. There will be a sheet over your legs so you don't even need to see the examining doctor. If you feel better seeing a female doctor that is fine. Just see someone who is knowledgeable re LS. The sooner you start using the proper meds the better you will feel.

    Re the advice to use soda water, I assume what was meant was baking soda in water. Some women find that soothing. I agree over the counter steroid cream should also help. If it is LS you will be prescribed a stronger one by a doctor.

    Re sex there are women who post here who are able to have sex when it is cleared up, but that is probably a case by case basis. Right now your health is what is most important.

  • Posted

    liez,

    you are certainlt descibing typical LS symptoms. for me after many drs visits my dermatologist was finally the one to get to the bottom of things. (no pun intended). you may want to start there snd then gyno. the itching is maddening and you will have remission times and then flare ups. in the beginning i was obsessed in looking down there, i just cant any more. be strong its hard but youll be ok

  • Posted

    hey there!!! i am 36 .

    LS comes and goes for me. i have a boyfriend and an active sex life.

    when first diagnosed i freaked and posted on this site making sure i was still going to be able to have a sex life. lol.

    ive discovered a lot of women refrain from sex, but they are also older.

    i dont refrain, all is good over here!

    go see a dr. main goal is to take care of yourself. get the goods for treating your issue. smile and keep on keeping on!

    xo

  • Posted

    Sorry to hear about your pain & fear. I have been dealing with LS since I was a little girl but I was not diagnosed for years. I have gotten more help from derm docs then gynos. One of the best over the counter products I have found is called CALMOSEPTINE. It soothes my skin, stops the beastly itch & creates a barrier so u can urinate without burning. It has saved me so many times. Pick some up asap u won't be sorry. Take care & please post and let us know how u are doing.

    • Posted

      Hi kimberly, I'm going to buy some of that as I have just seen it on Amazon and I like the price.

      Liez, go and make an appointment asap as it sounds like you need some steroid cream.

  • Posted

    Hello. I went to an OB GYNECOLOGIST but it was not for LS but for my 2 months continous menstrual bleeding. I undergo transrectal ultrasound and diagnosed I have PCOS or Polycystic ovary sydrome. The OB didn't mention anything about the looks of my Vagina though so my problem with itch and probable LS is still unresolve. I was also ashamed to ask her but I will ask her next time I see her.

    Thankfully though, the clobetasol ointment you taught me to use indeed helps... And taking antihistamine when the itch is too overwhelming seems to work on me too.

    I've researched about PCOS and it says it also causes itchiness due to hormonal. Imbalance, low estrogen or progesterone... And also having PCOS, i am prone to have Diabetes which also causes itch... I still have to get my sugar check. I'm taking contraceptive pills no normalize my menstruation. Hopefully my bleeding stops so I can stop wearing sanitary napkins which I believe is one of the reason that I'm itching as well, it's irritating my skin down there.

  • Posted

    if you get you a plastic bottle and mix soda water with AVEENO IN IT AND WHILE YOUR ON THE TOLIET LET THE WARM WATER RUN DOWN IT WILL HELP WHEN YOU PEE. I BOUGHT ME A CHEAP HOT POT TO KEEP IN MY BATHROOM AND I KEEP MY BOTTLE FILLED WITH WRM SODA WATER AND IT RESALLY HELPS. NOW I HAVE GOT LICHEN planus on my legs and you talk about itching mine really does. Hope this will help you some

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