HELP me :'(
Posted , 5 users are following.
I moved 3 years ago to South Carolina from Illinois and I kept my rheumatologist in Illinois because I have family there well he moved to another state where I know absolutely nobody and it would be a lot farther and I'm trying to find a Rheumatologist down here because I'm in a really bad flare now. I was diagnosed 10 maybe 11 years ago with lupus chronic fatigue and recently how for years ago with fibromyalgia I came up positive on my anh, biopsy and all the tests for lupus 10 years ago for 3 years now down here they want to reinvent the wheel and for some reason it came up negative but other tests were positive my hands are swelling I have sores on my face sores in my nose typical lupus flare but this one is just absolutely worse. I can't get any of them to listen they don't want to see the results from 7 years ago that everything was positive they wanna test now and I don't know why but its coming up negative information everythings positive but they said no I don't have lupus and took me off my Plaquenil and I was receiving a Kenalog shot every 3 months now they don't want to give anything and I am in so much pain they said I don't have lupus it's all in my head I can't take this anymore help me please
0 likes, 4 replies
marion64534 sheri1994
Posted
jean20935 sheri1994
Posted
Florabunda sheri1994
Posted
I have American family so I know a little of the US system. I also understand HBOs can be awful.
Can I suggest that you get hold of your old Rheumy and ask to have a brief discussion with him in Illinois? I don't know if you have to pay for this? However, they are not listening to you - and they might to him!
Next I'd say to them that you will hold them legally responsponsible for any negative impact on your health by their lack of treatment and their ignoring of previous tests.
You can't 'get over' lupus like the flu. You've got it or you have'nt. However, tests such as the ANA [anti nuclear antibody test] can vary at various times. So can the ESR (erythracyte sedimentation rate) - when you are inflamed it goes up - when symptoms well controlled it goes down
Can you change your doctor? Sorry that's all I can suggest as this is a UK website and the US system is so different.
All the best
Lupusgal sheri1994
Posted
Have you been able to find a better rheumatologist? I live in Charlotte, NC and could reccomend one here, but I'm not sure how far down into SC you live.