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help me please.!!

Posted , 4 users are following.

lidia1028
lidia1028

a year and half my daughter (5yearsold)was diagnosted with hypermobility syndrome (doble joined) she started feeling pain in one rib and then in the other one i took her to her doctor and they said it was "growing pains" but it was getting worse she started with pain in the other side , neck, stomach, back pain , they reffered me with the rheumatologist and he said it was hypermobility syndrome but i dont know what to do how can i help her ? she plays alot , runs alot but she is always complaining during the day even when she is watching tv or eating please help me

0 likes, 3 replies

3 Replies

  • natti82
    natti82 lidia1028

    Posted

    I'm really glad that you realize that it's more then just growing pains. For acute sharper type pain. I find ice and rest works best. With the achy burning type pain, it's more then likely a combo of slight muscle strain and really tight muscles. She should be careful not to over do it while playing, with me the pain usually creeps up later and I'm not sure what I did to cause it most times. So now I just take it easy even if I feel OK. She would feel soo much better if she got regular massages or learned self massage. The best thing to do for the long run is gentle low impact exercise to strengthen her joints to prevent future injuries. Epsom salt baths or biofreeze gel are my go to for the quickest relief. Tight muscles hurt so much. Staying on top of that will help her big time. Good luck.

  • denise79180
    denise79180 lidia1028

    Posted

    I agree with Natti. It's a fine balancing act. Some exercise every day is necessary to keep muscles toned and to keep healthy. I totally recommend swimming. This is low impact exercise for all muscles. Helped me greatly. Also learn meditation. Can help to be able to switch off from pain when nothing else works.

  • Treated
    Treated lidia1028

    Posted

    Sorry I can't help you but my daughter is the same. She is 6 now and I have discussed the pain with physio who suggest swimming. Her ankle also gives way which results in lots of falls and grazes. Still no advice given. It's good your daughter git to see the rheumatologist. Did he not advise anything. From what I have read it's common to get no real advice as majority of GPs and paediatricians are not fully aware of the syndrome.

    I'm be following this to see if any advice follows x

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