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Help me understand my BF and his Recent UC i have questions

Posted , 4 users are following.

alice23LOVE
alice23LOVE

Hello my BF has recently been diagnosed with UC and have noticed majjor distance is he depressed is he pushing me away he has mentioned he is afraid of me leaving him but i wont i care too much now anyways if anyone a guy in particular can help me much appreciated!!

0 likes, 11 replies

11 Replies

  • alexiaadams0
    alexiaadams0 alice23LOVE

    Posted

    I'm so sorry to hear for your boyfriends bad news. I had a long bout with UC including many medications and treatment including full removal of my large intestine and colon.it was hard and I lot of people didn't understand what i was going through. but I was thankful to have the boyfriend I did. We had fell distant about a a year after my surgery. But yeah I do remember this issue, telling him Id understand him leaving and wanting a "normal" girlfriend. I was super depressed and had mood swings. just be patient, I promise you someone with this disease can open your mind given you keep yours attentive. 
    • alice23LOVE
      alice23LOVE alexiaadams0

      Posted

      thank you for your reply and yes i do want to be very supportive i think the trouble started when he wanted to go out less because he didnt feel well i suppose it is selfish of me but i really did not understand the pain he was going through he was recently diagnosed having his first flare i just feel as though his mind is somewhere else
    • alice23LOVE
      alice23LOVE

      Posted

      i might add i do nag that he does not spend enought time with me or care anymore i feel horrible adding stress to his life while he is sick it is just hard for me to fully accept he is ill because he looks normal but i know he is not and is just being strong

       

    • alexiaadams0
      alexiaadams0 alice23LOVE

      Posted

      I know he looks normal. Trust me nothing is more fusterating than people belittleing this disease because its not like a broken arm you can physically see. The medications make it worst. On top of having physical pain he will have emotional trama. I van even begin to explain the uncomfortablility i was constantly in, my stomach and mind. I was on steroids for 3 years and they wear on a person. before they figured to try remicade, doses of chemo. Then they moved forward with full removal of my colon and large intestine while having an ostomy bag for two months. I would say my happiness times are we I would smoke a jay with my bf and watch a movie. Have him try a gluten free diet it really helped me. 
    • alice23LOVE
      alice23LOVE alexiaadams0

      Posted

      wow sounds like youve had a rough journey i think i need to be strong for him since i truly dont know what hes going through adding burden to hime wont help i just want to be there for him
  • Zigsta68
    Zigsta68 alice23LOVE

    Posted

    I am a guy and I have had UC for 13 years with very little trouble. It is quite normal to get upset and depressed when you first find out you have it but as long as the meds work for him he will be able to have a perfectly normal life.

    How old is your BF and what meds is he taking?

    • alice23LOVE
      alice23LOVE Zigsta68

      Posted

      well he was recently diagnosed two months ago after his first flare bloody diarhea and he is now on his first time on prednisone started at 40mg and is now tapering on 10mg i dont know if i should give him space while on prednisone since ive heard of all the nasty symptoms any advice? what is he going through being on prednisone?
  • Zigsta68
    Zigsta68 alice23LOVE

    Posted

    I haven used prednisone so I am not sure what the side effects are but it sounds like it's an immunosuppressant drug. I am about to start on a different an immunosuppressant drug Azathioprine. He's only two months in so he's probably a bit scared and a bit angry "Why me" just give him some time and I am sure he will come to terms with it and things will get back to normal.
    • alice23LOVE
      alice23LOVE Zigsta68

      Posted

      your right i hope he begins to feel like himself or becomes more used to his disease maybe he just needs to learn how to now make it part of his life i hope it gets easier overtime right?
  • barbara80658
    barbara80658 alice23LOVE

    Posted

    Hi Alice .It must be awful for a man to have this awfful disease. Ihave had it now for 3 months. Idont know how Iam coping.Have to have an enama every night for 6 weeks. Plus 4 big pills in a morning. Why me. Hope there is a cure . can anyone tell me if they are cured Please. B.

    • alice23LOVE
      alice23LOVE barbara80658

      Posted

      hi barbara i am sorry you are going through this i hate seeing my BF go through it i think though overtime you begin to accept it and it becomes a part of who you are you are the boss of this disease and i think it will make you a beautiful person if you let it and a stronger one as far as cures there arent any except possible remission?
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