Help more seizures

Claire I don’t think there is anything normal in epilepsy. As a kid, I had one grand mal seizure at age 7. Afterwards, my episodes were classified as petit mal. I went through various med before finding one that worked. I had remained seizure free for years and in my 20’s my Dr. closed my case. Two years later, my epilepsy returned in the form of generalized tonic clonic (grand mal) and partial seizures. It’s been a menagerie of trial and error drugs/combos since then. I’m currently on both lamotrigine and levetiracetam (Keppra). It’s a frustrating experience finding the right meds and the right dose. After problems last year, my Dr. has changed the form and dose of both meds 3 times. I’m in my early 60’s and expect to remain on drugs the rest of my life even if I remain seizure free. I hope they soon find a med(s) that work. I have never experienced head pressure. I think being under stress lowers the seizure threshold. Is working in a nursery putting extra stress on you?

My Dr doesn’t believe in vitamins but I take a daily B complex since some B vits are thought to play a role in the nervous system. Sorry I can’t offer any specific advice.

Take Care, Steve

Hi Claire they are scary for us and onlooker xx

I started mine at puberty and 14/15 (late developer lol).

I was put on phenobarbitone at 14 and been on them all my life. in my 60's now.  You need to see a Doctor about them as thats a lot to have.

Keppra and pheno work for me but each individual is different.  Plus I notice my hair is falling out on Keppra argh !!  but I haven't had a fit for 4 years.  You need to see a Hospital Doc and tell him you do not want ones that he would not give his/her family if they had epilepsy, Good luck  xx keep a smile there xx

Win xx

Meant to put I am on Vitamin B also xx so Steve is correct

Good luck Claire xx

Win again !!!

Claire, Winnie, and other etc’s

You might want to consider getting a medical alert bracelet, necklace or some other medical charm with an inscription of your name, the meds you take, and emergency phone number to contact or other pertinent information engraved on it. Personally, I wear chain around my neck with a dog tag tucked under my shirt. I’m not married so I have my brother’s cell and land line phone numbers on it. You can find them on the web. Mine is stainless steel, cost +/- $55.00 in the U.S. They can get expensive if you opt for gold or a fancy design. The only option I paid extra for was for a thick necklace chain. I noticed the thin chains put more pressure on my neck. But what do I know about chains, I’m a male and don’t wear jewelry. I don’t know if you have this feature, but my cell phone has an emergency contact name and number at the top of the page.

Take Care, Steve

Steve and Claire Hi again,

I think gold would suit me better lol.xx

I can get Hubs to buy it for a pressie.

Claire dont forget to see Epilepsy Doc xx

Be well you 2 and all xx

Win