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I was dx 3 years ago and put on oxygen full time..I am 52 prior smoker..quit years ago. I have an Immune deficiency that lead to bronchiatasis and I also battled stage 4 Non Hodgkins Lymphoma 7 years ago lots of chemo. Long story short previous lung dr NEVER did any lung function tests on me...for 3 years..my fault? No..Im not a dr...I went to all my appointments every 3 months...Jump to Dec 2017 this year...I was hospitalized with pneumonia and my right lung collapsed...Had bronchoscopy. Was sent home on 5 liters continuous o2. New lung dr tells me in hospital that I will need a double lung transplant in 5 years...he was very short about it...A double lung transpant. He did the breathing tests a few weeks ago and they were not good...apparently I also have the paradoxial (sp?) to anything with albuterol in it...and thats what I was on for 3 years...He now has me on Dallaresp and Xopenex..My oxygen levels when I was sick were low...they are now sometimes at 85..lowest I ever went was 78...Nighttime is good 95 or above..This lung doctor scared me...I am a cancer survivor and for 5 years I was agonizing if my cancer would come back...that was horrible having that over my head..now its been 7 years since and this lung dr is telling me in in 5 years I need a double lung transplant...I probably wouldnt even qualify for one because of my Immune Deficiency (Common Variable Immune Deficiency)...and honestly I cant see having such a surgery is a low success rate of even reaching 5 years with the new lungs...or less....I wish he didnt even open his mouth about a double lung transplant but he was so cold about it ..On the first appointment with hm in his office all he did was read my chart, type in his computer and make grunting noises like he couldnt believe what he was reading...My husband and I were so confused...THEN he got up and walked out...our appointment was over and he never spoke to us or answered any of my questions....So...I have an appointment on Tues...I will keep it but honestly would you find another doctor? I am so sad he said this to me and then wouldnt elaborate and just left me hanging...is my life over in 5 years??
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