Help needed!

Hi Suecon,

Yes, I sometimes get the feeling I'm coming down with a UTI, similar symptoms to you. I get a pressure in my bladder feeling, discomfort, sometimes burning when I urinate.

I avoid putting creams anywhere near my urethra. And if I use an oil as a moisturiser, I avoid my urethra then as well. Remember that UTIs are common in women anyway, but I think the LS, the creams, the irritation of the skin etc probably gives us an increased chance of getting UTIs.

I take showers rather than baths as well, all the usual stuff to avoid UTIs. I don't even have sex anymore.

I did some research about UTIs and LS and I found from reseach articles that LS folk are more likely to have bladder issues. But see what the others on here say, it might be more unusual than I think.

Oh and by the way. I had my first UTI about two years ago/18 months ago. It took 3 months for the symptoms to heal fully. My bladder feels different since then and I still get sensations of discomfort if I eat certain things, ketchup is the worst! If I eat ketchup I'll have UTI feelings for about a week. I think sometimes the bladder gets irritated or sensitive.

In terms of medical intervention... I have no idea what a doctor would suggest. Perhaps further investigation, perhaps "it's one of those things". I'm sure there are ways to keep your bladder happy though. I know certain foods can trigger discomfort.

Hope all that was helpful!

Hi Suecon, Are you certain it is LS. 3 or 4 lady doctors at my practice diagnosed LS and I had constant UTI's with negative results. I was sent to see a gaenocologist 2 weeks ago and told it was severe Vaginal Atrophy. I'm now back on my hrt and bladder has already settled back down and getting back to normal. For me it was an estrogen defiency which I always suspected but no-one would listen. Hope you get a proper diagnosis and an end to the suffering

Hello Sue

I have been experiencing UTIs for longer than I have been diagnosed with LS which was in 2013.

I had about a year or so of getting them every few months - 2 in about 3 months on one occasion.

But in between times I had bother like yourself, as if I had an infection but the result came back negative.

I was referred to a urologist who diagnosed me with Urethral Syndrome which does cause symptoms like this.

I read up a lot on this syndrome and now manage it very carefully and find I get less bother than I did.

I was given the option of a camera in my urethra to check for issues but due to the LS I was not keen as it would also mean having an anaesthetic to avoid pain and distress due to the LS.

So far I feel I am managing it a lot better than I did.

I suggest you go back to your GP and tell them how much bother it is giving you aside from the infections and perhaps get a referral for further investigation.

I did also get a bladder scan which came back clear.

It is a very, very distressing condition on top of LS and possibly caused by it as confirmed by my urologist.

Wishing you all the best.

Persist and get some help for sure.

Oh yes! For months I thought I had or was getti g a UTI, all my over the counter tests strips were negative. I also had stress incontinence ( squirted whenever I sneezed, coughed, jumped, ran, lifted something heavy- thought I was going crazy. It broke down the integrity of my skin, I got sores and pain, eventually itching which all led to a diagnosis of LS- i do believe they are related. 

I did suffer with this for a while . I now drink a lot of water to flush the bladder . First thing in the morning I drink a pint of warm water with half a large lemon freshly squeezed in it . Lemon turns to alkaline when in the body , so neutralises the acidity in the bladder .  I find this helps . It tastes nice as well and gives you vitamin C to keep away colds and flu as well . You won’t lose anything by trying . 😄

I to have recently been diagnosed with LS and thought I had a outbreak turns out I have a raging UTI also along with outbreak both driving me mad 

Any suggestions for the burning it’s getting me down the most