Help on dupuytren's scar

Posted , 3 users are following.

Hello!

I was diagnosed with Dupuytren's syndrome and I did surgery on my both hands. The right hand was ok but the left one (a different doctor did the surgery) left a big scar as you can see on the photos attached.

Any of you can help me with some suggestions of what I can do to relief the pain and the sensation of burn?

I’ve tried many things (different kinds of creams, medicine, argil/clay and others) but none are making progress.

It’s very difficult to find literature about it and our local doctors know too little about this Syndrome (they just do the surgery and the consequences are entirely yours). The worst part is that you have to sign a paper agreeing with this!

So, I'm here trying to get some help from you!

Thank you,

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4 Replies

  • Posted

    I understand UR issue with the scar. I have duputrens contracture . Had surgery in rt hand scar is terrible. I also had unsuccessful surgery. The whole Hans curled up and is frozen. Surgery was on onw finger. This is the risk with DC. 

    I am going to a plastic surgeon who specializes in xeriaflex injection which is a bio drug to open my fingers . He will fix the scar to open the pinky the scar is like a zig zag pinking sheers made the crooked incision. 

    Plastic surgeon are trained by the pharmacuiducal company . U can ck in UR area for many plastic surgeons who can help u out with the scaring,

    check online then call those plastic surgeon who have experience with DC. 

    ITS A very tricky condition there are injections with needle only for DC. CHECK ON YOU TUBE FOR EXPLAINATIONS. 

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  • Posted

    Hi Daniel,

    I had surgery on my pinky for DC . As a result it did the opposite and left a huge scar and caused a flare and pulled all my fingers down, & disfigured, & frozen. It is a form of arthritis. The scar tissue gets so tight is almost cut off the blood circulation. 

    I tried  NEEDLE APONEUROTOMY which helped open the small finger & scar a tiny bit. Must be done by a plastic surgeon who is familiar with DC .

    Next is a biologic drug it's an enzyme that breaks away the thickening tissue causing the hand to curl inward. The drug is XIAFLEX. I have a hand a plastic surgeon doing the treatment. He was also in the clinical trials on this drug. He has helped split open the scaring from the surgery from the previous surgery by another doctor who,was a hand specialist!????

    You can do a search on hand plastic surgeons to clear out the scar tissue. Then do a search on XIAFLEX they will help you find a plastic surgeon experienced in XIAFLEX injections by zip code. Or he can do both.

    i go in Monday for the first injections three at most is quantified. Then at 4 week intervals more if necessary.

    This is in both hands and I will not let anyone touch my other hand. Any inyetference causes more issue. As long as I can still us my hand without the pain the sermon caused I'm set!

      

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    • Posted

      That is so true every attempt to straighten fingers caused a flare .

      Xiafex injection were done in February 2015 & opened my finger from a closed position of 180' and all the scar tissue from the surgery was gone. 

      Xiaflex is a enzyme which dissolves collagen in the tendons that cause the contracture. Scar tissue is made up of collagen which explains why all the scar tissue was dissolved to during the injection process.

      Something new to consider. See website for more info on the bio drug.

      Xiaflex was a painful experience for weeks. But now the finger is straight and things are easier. I wear a spring splint during the day and will need to wear a hard splint for many years at night. 

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  • Posted

    Hi, Daniel -

    Your problem looks as if it is hypertrophic scar or possibly keloid scar. Options include silicone rubber compression bandages while sleeping, cortisone shots, or low-dose radiation. I'd like to know how you are doing now and answer any questions of yours. Please contact me - thanks!

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