Help please.

Posted , 7 users are following.

Sorry for posting just looking for advice.

A few months ago I woke up one morning and felt like the room was spinning, so badly that I had to hold onto the walls. I got back in bed and went back to sleep, when I'd woke back up it had gone. Anyway.

It happened again the other morning and I did the same thing. I knew as soon as I lifted my head off the pillow that I was dizzy. Then a few days later I was at work and jolted to the side, it's like I'd been pushed and like my vision had moved to the side. It seems to happen more in the morning and late at night. I've just been sat here on the sofa on my phone (9pm) and I jolted again like my vision had shifted and I feel lightheaded now. The room isn't spinning but I definitely feel abit spaced out and my eyes feel tired if that makes sense.

Does this sound like vertigo? Thanks.

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13 Replies

  • Posted

    Yes, you are describing episodes of vertigo.  You need to be examined carefully by ENT, especially someone with a special interest in neurotology.

    Eleftherios S. Papathanasiou, PhD, FEAN

    Clinical Neurophysioliogist

    Fellow of the European Academy of Neurology

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  • Posted

    Take the docs advice. I wasted alot of time and money going to docs trying to figure this out. A regular ENT won't help. Neurotologist specialises in these problems. I been to a reg ENT 3 times since September. He did nothing. Then finally referred me to a neurotologist up north. We have none in my area.

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    • Posted

      Did you get an appointment with the neurotologist and if so could he help?I have had those sudden room shifts over the years and now am unsteady and slightly dizzy all the time. ENT and neurologist can't help.

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    • Posted

      Yes. Had to travel a hour and a half to see one but I got in. He redid my hearing test / audiogram. Said the results from it, my history, the fact I have had this so long and it won't go away, it is not bppv. Took him my disc from my MRI, VNG results, all that good stuff. He said the symptoms don't fit bppv anymore. It's menieres. His audiologist did alot more than the one I went to at my ENT office. Felt like he knew alot more. Place I went to is a monstrous sized complex. University hospital. He wants to start with diuretics. Try to reduce fluid first.

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    • Posted

      I live in the U.S. I went to Upstate Medical University in Syracuse New York. This place is so big I don't think you could walk from one end to the other in a day. Lol. Just a massive medical center

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  • Posted

    Hi Annie,

    How long does the vertigo last each time? Also, does it seem to be associated with a change in head position? If answers are < 2min and yes then you should read up on a common cause called BPPV and the dix-hallpike/epley maneuver

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    • Posted

      Hi Annie,

      For eppisodes lasting more than a minute.  The 2 most likey causes are Migrane Associated Vertigo (MAV) and Ménière’s.   My suggestion would be to read up on both of these these and discuss with your Dr. Ask why your Dr thinks it may be one and not the other.  Three are no direct tests for either of these conditions.  Likely, your Dr will get a good history of your symptoms and suggest a treatment.  For Ménière’s, they often suggest a low salt diet and may perscribe dieretics. For MAV, it is common to cut out food triggers like chocolate, and others know to cause headaches.  Really sorry to hear about the Vertigo lasting so long.  For some people vertigo leads to a lot of anxiety.  It is good to meet with a Dr to rule out anything serious so you don't need to worry. However, most of these vertigo cases, while they feel horrible, are not dangerous.  You should see someone more specialized than a general Dr.  an Ear Nose and Throat Dr. (ENT) or Otologist (ENT with extra training on Inner Ear)

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  • Posted

    I bet it's BPPV.  You can google and find out  manuavers to do at home for this.  The Epley and half-somersualt work for my symptoms.  Reminder that you HAVE to keep your head upright for at least 48 hours after doing this.  Even when sleeping.

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    • Posted

      But these happens when I'm sat still as well without even a head movement. I read that bppv only happens with head movement? Of course I also have it sometimes with head movement but I get the occasional jolts of dizziness when I sat/stood still

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  • Posted

    I have BPPV and I even get it when I'm not moving my head.  Just try the manuvers They won't hurt you even if you don't have that.

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  • Posted

    Dear Annie

    it sounds like you have something called Bppv (Benign Paroxyimal Positional Vertigo) 

    have you had a bad infection or a bolt to the head in the last few months? 

    I have had this condition for 23 years some patients can be cured completely some have the symptoms on and off forever (that's me) they come & go & when they come the condition pretty much takes over your life & you can become pretty much housebound, not nice & V frustrating especially if you are usually very active. 

    there is a treatment called The Eply manoeuvre which is a kind of manipulation so if you have Bppv you will need this.  if you go to the GP they might be able to do it there but more than likely you will need to be referred. 

    I am trying to organise a help group are you interested. ??

    Lyn Upson 

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