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Help please

Posted , 5 users are following.

heidi46330
heidi46330

Can you tell me your stories please. I have just been to the doc and she thinks this is what I have.

I am in pain a lot of the time. Have pain in my shoulder, hips, the bone in my bottom feels like it's going to come through my bum cheeks when I'm in bed or bend over.

I don't sleep very well because of the pain and am exhausted most of the time. I also have pain in my feet and ankles.

Any advice would be helpful

0 likes, 5 replies

5 Replies

  • pollmadoll64
    pollmadoll64 heidi46330

    Posted

    the best thing to do would be to see a Rheumatologist if you can as they specialise in this . I have had Fibro for over ten years and it took two and a half years of wasting my time with 4 neurologists. Do you get restless leg syndrome at night too?
  • kiki74
    kiki74 heidi46330

    Posted

    Hi Heidi. I'm sorry you are going through this tight now. Many of us on here had to go through many tests and doctors to get diagnosed. They are working on a blood test but it is not available to the masses yet. So instead they have to rule out all other illnesses that can mimic the symptoms. A rheumatologist can perform a tender point test. Basically they press on different pressure points to see where it hurts. A score of 11 out of 18 will confirm diagnosis.

    If you are diagnosed, it is treatable. While there is no cure but through diet, meds, exercise, supplements, physio, accupuncture etc. You can manage the symptoms.

    I started off with tingling in my hands and feet. Then the pain, exhaustion and brain fog came on. Soon it was ibs, muscle spasms, twitching and restless leg. New symptoms just kept coming. But don't worry. We all have different degrees of the illness. All have good days and bad. But we are all here for each other.

  • marienorfolkgal
    marienorfolkgal heidi46330

    Posted

    Hi Heidi.  Fibro started for me last year when my neck went into a spasm, I couldnt turn it and was in agony.   After lots of going back to see gp, blood tests, MRI etc I  was diagnosed with fibro.  I have flare ups which can be very bad but then I can have a good day.  I manage with meds and pacing myself.  I get IBS, restless legs, sweats and then cold, pain all over etc.  I had to give up my job after taking a lor of time of sick and having a very unsupportive employer and I was in the care sector!! I have now got another job in a shop which I hope will be ok for me. All your symptoms are the same as for me too. 

    In time I am sure you will learn what works for you.  

    • heidi46330
      heidi46330 marienorfolkgal

      Posted

      Thank you so much for replying to my post. I also work in the care sector and am.struggling. my gp suggested that I speak to people and learn? See that I am not alone.
    • jeanne81532
      jeanne81532 heidi46330

      Posted

      Hello Heidi, I was a nurse for 30+ years when I developed fibro. I eventually had to give up nursing, amid feelings of panic about what other jobs I would be able to do. I was offered a temporary post as ward clerk, to cover Maternity Leave, so thought that would at least give me a year's grace. I enjoyed the job, although my income was halved, but there were still things I was unable to manage, and I had a flare up when my husband was diagnosed with prostate cancer, and other episodes where the fatigue was so bad I couldn't go in to work. Towards the end of the contract, I had to face up to the fact that I could no longer work. My GP signed me off and I immediately claimed ESA. I was already receiving PIP. I was granted ESA and actually it wasn't as scary as I had thought, not working, my husband had surgery, and was back to work within a few weeks, and we are managing financially at the moment. My point really, is that things are rarely as bad as they seem, and worry is a pointless emotion, because it won't change anything and just makes you feel bad. Take care lovely, gentle hugs. xx

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