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Help please anyone desperate 10 non stop years of hell

Posted , 7 users are following.

michael33268
michael33268

Ok Guys please help me: I am in dreadful pain and sickness once again, which has been my life for the past 10 years now.

I am a 58 year old male 10 years ago I was diagnosed with having Meniere's Disease after a very long spell of not being able to stand up, I was trapped on the floor, any attempt to get up made me vomit and the room just went around and around.

This eventually stopped after a 6 days, it left me with both ears ringing loud, this truly has not stopped once in ten years, if the sound was on a radio, the sound setting would be today a 6, in the past when I ate the dreaded salt, caffeine, and all the triggers we know it would be so loud I could not hear.

Despite not eating any of these, my ears have not stopped having ringing sounds in them for ten years 24 hours a day 7 days a week, I have seen all the gps, all the specialists, and there’s nothing they can do.

They did however put me on serc16 10 years ago, and it just takes a little bit of the unbalance away, but I still walk drunk, and feel dizzy a lot of my day every day, on the odd occasion when I tried not being on serc16, within 36 hours I was unable to even walk I was so dizzy.

My main problem and it’s a huge one, is the weather, when the weather changes form low pressure to high pressure or vice versa, my eardrums feel like they are pushing outwards, my eyes cant stand any light, and my head feels like it’s being pumped up with a pump, this makes me feel sick to the stomach, in mind blowing pain with headache, and it lasts until the weather changes back again.

If the weather go’s from say a nice hot day, the change in atmosphere pressure instantly affects my head ears and sinuses, all my sinuses have been checked out in my nose, but no dr can stop my nose from also becoming blocked when the weather changes, the worst days are low pressure weather systems they really hurt me and make my ears and head eyes and tummy upset.

Even when I feel fine just going up in a lift a few floors hurts my ears and makes me feel sick and dizzy, also if I am in a room and someone opens and closes the door my ears hurt really bad, or opening the car door, any change in pressure causes problems for me.

And yes I have done all the things like yawning, or pinching nose and gently blowing, I have had ten years of non - stop pain, spent my life in the drs, with consultants, specialists, cant take much more, I can even go up a small hill or mountain, when my wife and I go to spain on our summer holiday , because of me we take a 36 hour coach trip down and back!!!!! Because I’m sure I would ruin everyone’s flight if I dared to fly for first time in my life.

God knows what would happen to my ears and head.

I really need has many tips tha tmay for once help me to live with this, I am sure I will never get better, but need to be able to do something to combat the affects the weather changes are having on my Meniere's Disease please help in any way.

1 like, 19 replies

19 Replies

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  • angela79369
    angela79369 michael33268

    Posted

    Re betahistine over serc, I was ticking along ok on betahistine then the chemist gave me serc but they said it was the same. However the ingredients aren't quite the same and I had a bout of spins. Could be a coincidence because this disease is random but I wont personally touch serc now. What is flunarizine? When do you take that? Im also on a water pill every morning.
    • misskent
      misskent angela79369

      Posted

      Def stick to betahistine. I do take 24mg as stated and this has def helped me. I am still suffering daily but not as bad.I wake up unsteady,  sometimes with dizziness; I seem to get worse towards the end of the day, after doing too much or tiredness. I am still off work-6 months now. I just hope the Cons can suggest something; however there are lots of questions I want to ask after being on this forum!!!

      Hope you get some amswers. P.S. my GP had no problem letting me try 24mg.

    • misskent
      misskent angela79369

      Posted

      Thought I was replying to Michael!

      I am doing OK but still want to speak to the Cons.

      Do you get on OK at work????

    • angela79369
      angela79369 misskent

      Posted

      On 24mg I was still getting daily unsteady 'world not right as you look about' and relied on lifts to/from work, I work part time in a fairly quiet place thankfully. But the world is a noisy old place and normal noise to others is awful for me! On 32mg x 3times a day, the daily symptoms of unsteadiness loss of focus moments have disappeared. Plus the grommet in, I feel almost normal most days. I have tinnitus which gets louder on and off during the day. I'm hypersensitive to noise so avoid going out to public places (get shopping delivered, and meet friends at houses rather than pubs/restaurants).  I guess it's about adjusting life around this disease and focus on the things we can still do and enjoy rather than things we can't.  I'd like to say I've done all my crying and tantrums on why me, but still get very low at times.  You could try 32mg for a few days yourself and see if you improve further? Your body, and people are on higher doses of 48mg even. Always drop back to 24mg, just a thought. You get through the packet a lot quicker mind you!
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