Help please! Anyone know about Pregabalin?

Posted , 7 users are following.

Hi , I have been taking Pregabalin for 10 days now. I was started off on the 25 mg dose. Before I took these( recommended by pain consultant) I said I was really,really worried as I was very sensitive to drugs,and got side effects on very low dosage. He said he would not move up the dosage for a month( consultant said 5 days) and if I had problems I am in no way forced to take them.fair enough! I was still actually frightened to take the first one, I even cancelled appointments. The next day I could not believe it,not much difference in pain but wow what a difference in mood. I suffer from anxiety and I was very chilled.no side effects at all! Next day same again, I felt like I imagine most normal people feel. I was lovely to feel. Wanted to do things! Alas it wore off! I still felt better mentally,slight pain reduction( but is that because I could cope?) I would have settled for little pain relief at25gm as I felt so much brighter and able to cope. BUT last 2 days I woke with blocked ears,headache all day,much more achy,the desire to keep peeing all the time and generally feel pretty awful. I know I'm only on 25 gms ,but now I'm really concerned. Can I just stop taking these? Do I need to taper off after just 10 days? Should I stop at all? Fed up! And any advice would be great....thank you. 

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  • Posted

    Hi lynda40659 I have tried these only for them to render me virtually immobile due to the advancement of agonising pain to every trigger point in my body but especially my feet I would wake some mornings unsure whether I would be able to put my foot on the floor let alone walk.  As I am under a hospital pain management consultant as well as a senior occupational therapist and just been guinea pig to another prescribed medication called gabapentin which has caused me to go from a size 16/18 to a size 26/28 waist measurement and again served to give no pain relief again whatsoever just advanced again to especially my feet once more and worse still my shoulder blades so sleeping is a struggle now for me too.  I am now coming off all my medication as have been told because all my body is in 24/7 agony in truth no pain relief will help with a body that is full of his dreadful illness and all that comes with it I have everything brought on from a major trauma accident and two troubled pregnancies.  I do my best to push through all day everyday as for me to sit down just cripples me yet to further bring my life down CAB say I do not qualify for PIP I also have antidepressants with some element of pain relief but get none from this medication too my dr has offered to pay for me to go to Slimming World but walked away with him being unable to listen to reason.  I asked for e removal of my stomach and bowel as have no quality of life to carry on for and no highs from all the experimental medication he out me in I will go back to grinning and bearing it before I am in a state of shutdown and everywhere seized up so believe me pregablin can prove detrimental to this illness.
    • Posted

      Really sorry you feel so bad Julia. I get very fed up with the state of myself sometimes,but I know there are people much,much worse than me.

      i hope you can find some relief from what you are going through,it sounds terrible. Wish I could say more to help.X

    • Posted

      You certainly CAN claim PIP. I and many others on this forum do get it, so apply now. Good luck. xx
    • Posted

      Julia, I don't know why CAB would tell you you don't qualify for pip, it isn't their decision! You would qualify for pip if you fill in the form right! See if you have a Welfare Rights team in your area, it will be part of your council. There is an excellent website you can look at, I'll try to give you it but do a search for "disability rights" and it should pop up.

      take care

      S x

    • Posted

      try using fightback4justice there legal eagles and no how to fill out your

      pip form its free 

    • Posted

      i read all the information on the drugs used for fibro

      and decided not for me .i already felt awful and the pain at times 

      would have me sobbing.i knew risking worsing my condition wasnt the answer for me . so iv always done natrual .

      i am not cured and at times the flares have been absolute agony but i have narrowed down things that help , after years of trial and error

      but for me defo the fatigue that is the worse for me theres no relif from that and that is what ia m suffering from now the worse .6 weeks i have been sleeping the clock round and still feeling tired i wish there was a cream or potion that could fix that .

    • Posted

      you can claim it ,but dont hold your breath 

      when i went for my so called medical i got a women firing questions

      at me ,as i am suffering with chronic fatigue at the moment i was struggling

      to answer ,and started crying with frustration 

      because i suffer every day ,but its so hard to explain to someone who just dosent suffer , she asked can i wash my hair i said yes in a shower she didnt ask how often i felt up to it ,which is about once a fortnight , the rest of the times i just let the water run thru it, 

      she asked if i could see to my toilet needs which is yes , she asked if i had a computer have a family one then she asked what i did on it 

      i said home shopping, she didnt ask how i managed it 

      like one week i ordered enough cake for a street party ,

      and another week i ordered two lots of shopping for the same day .

      she also didnt ask how long it took me to do most people will 

      take a hour once a week it takes me hours over several days 

      and i still get stuff wrong and forget things 

      fibro is about pain and fatigue and how it effects us one of the ways it effects me is lack of concentration , because i am so tired all the time .so iv said yes to most of the questions which will mean a fail and a apeal 

      which i will do but hopefully with support from our local disability action group. and i will try to have stuff written down for him to work from 

      the thing that upsets me the most is they just dont get it. they ask if i can dress myself well yes i can because i only ever wear dresses or leggings

      that are very streachy i cant do buttons or zips icant get a pr of tights on 

      or socks or boots and shoes unles they are mules,you adapt to this you can manage. but it still dosent take away the constant pain, and fatigue 

      dizziness, constipation bouts,direeh , skin itching etc etc 

    • Posted

       if i got a new computer straight out of its box i would be stumped

      wouldnt have a clue how to set it up

      i have accounts but set up by my husband i wouldnt know how to to do it

      his shown me several times how to check where a email comes from but every time i get  a dodgy email iv forgotten how to check .

      i needed to set up a transfer account because our bank closed .and done away with the savers acount card ,so i couldnt access my savers any other way except transfering it to my other acount ,

      i was in tears on the phone to the bank i was so frustrated i didnt know any of my pass words even thou i had written them down last time i got them muddled up

      had to set it all up again .she told me because iv written them down that my account was not covered if it was cleared out .

      i was so upset and stressed i gave permission for my husband to finish doing the new set .but of course thats not on my pip claim form

    • Posted

      Oh tiswas;  I am really beginning to understand how Miserable you are. i really don't have much to say that will help you, from  over here in Australia.  I do think that perhaps, to start to get your mind back on track, that Maybe taking some time for yourself, and Investing some real help (outside of GPS etc);  have you seen a Social worker?  There are Social Workers who work in our Public system, here, and I think this maybe your first point of call....they will assist you to fill out ALL forms for you, next they will organize some Emotional support ( I think a Pscychologist rather than a Psychiatrist)....from my experience they are more approachable, and understanding of your home problems.....if you start with with these 2 avenues, and then ask the Social Worker/Psychologist to refer you to the other appropriate help.....I know you have built up a resistance to taking medications; however, from my experience, too,  with the Right meds (mine being Gabapentin, Amitriptyline), and give them time to work into your system, you will see some improvement in your pain levels.  When we can control our pain, we find that all other issues can be dealt with in a more capable manner....our brain/personality comes back.  You need to help yourself here, for as you have said, others don't understand our pain/problems, so we have to do the best we can, to get ourselves back on track......do you think you can start these balls rolling, and let me know how you get on.....it will take time, but we all need to perservere, as many have already said....start with a smile, and a positive attitude, and I think, maybe your husband will see the change.....find the woman he married?     Bron

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