Help! Seeking a LLMD or Specialist in Greater Boston Area! Or CT or NY.. I dont care at this point

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Hi, I am in the greater Boston area. I have had Chronic Lyme and have been going through the ringer for some time now.. 8 years off and its back again. Currently seeing a doctor that has me on a regimen of 4 antibiotics (doxy, rifampin, clarithromycin and nystatin, etc.) along with a several supplments. I am seriously scared for my health and have not been able to see an end to this. The antibiotics have helped a little bit but with elevated liver enzymes high enough to stop treatment for a week or so and restart.  I am now considering to stopping treatment and seek new help. They make me feel absolutely horrible .. chest pains, stomach problems and irritability.  While being off them, I feel better with the exception of the myalgias, various arthralgias and lack of energy throughout the day. I am willing to seek help at any cost. Can anyone please recommend/refer me to a LLMD or specialist in the Boston Mass or surrounding areas that has helped with this disease in this stage. Looking for someone with knowledge and experience with their recommendation.

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  • Posted

    We are currently Looking for specialist ourselves.  But in the mean time you can try ozone therapy.  My husband has done it a few times and it helps for a while when he does.  We are getting on a more regular schedule with it to see if there’s anymore benefits, we were told there will be the harder you fight it.  Antibiotics are good but may not do the trick alone.  As I’ve learned there things called biofilm which prevent lymes disease from being treated with antibiotics.  The bacteria encases itself in biofilm and the antibiotics can not penetrate to rid them.  That’s why it’s important to try the ozone therapy and IV antioxidant therapy they do as well.  This, along with other treatments they offer, will help rid biofilm and make it easier to get to bacteria. 

    • Posted

      I can attest to biofilm's effectiveness - it is like a titanium turtle shell.

      Any info on what might break the biofilm down?

      I have microscopic indications that skin parasites carry and can readily excrete a large amount of biofilm - it looks like when killed or damaged, the biofilm releases (not a "study" just an observation and theory), meaning  attempts to remove them only makes them dig-in and fortify. If accurate, this type of adaption makes finding a way around or through this barrier criticsl

      Thinking elements like sulphur might be helpful. Breaking through the biofilm issue seems to me to be the key to success including skin parasites (many arw probably Lyme related directly or indirectly).

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