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Hi, I will try to keep this as brief as possible!
I have been diagnosed with crohns for 17 yrs, but had it for approx 22! I suffered the usual to start with, toilet visits sickness, skin rashes, and very sore mouth. I had an appendix op which turned out to be crohns and symptoms worsened at 27.After the birth of my first child at 29 I had pain every day,fatigue and could hardly walk at some points. I fell pregnant again a year and a half later and pregnancy was great no symptoms! After was a different story, I was in a flare for 6 years + this carried on over the years with terrible pain most days, some days were better than others however I don't think I had one day completely feeling well! I take 100 mg of azathioprine and have B12 injections every three months, I also had a course of vitamin d and folic acid.I avoided an MRI as was quite scared, I began to feel a little better in 2015 but I am regimental with my diet this helps me a lot! I avoid all the usual, fizzy drinks no skins, pips, vegetables! I mainly live on rubbish! This I think causes me fatigue but keeps pain at bay! Jan 2016 I succumbed to having an MRI as I was so fed up with my diet! The result they found was 3 Fibrostenotic strictures all in close proximity to each other in the small bowel.After the MRI I was in a lot of pain! Since I have had the scan my inflammation markers are good within normal range. But it was suggested I have the resection now as at some point I will probably need it and best to have it while I have it under control? Also better to have it electively rather than emergency. My surgery is 3 days away now and I am going through all the positives and negatives (Like we all do) your experiences would be greatly appreciated as I am feeling rather nervous, thankyou.
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