HELP! swollen/painful glands and many other ongoing symptoms

Did you get an answer in the end? This sounds a lot like chronic fatigue syndrome (also known as ME) to me!

hey hjo my name is kevin and ive been experiencing every single one of they symptomsi have had and i have been to doctors on top of doctors went and had ANA done by my doctor that came back noram i started off late july early august with a electric shock sensation that went from the top of my head to the bottom of my feet so i thought nothing of it so the next day my neck started getting very stiff and i was like i said well this is just something that will go away its iikely some time of virus and it would go away within a few days or a week or so so i paid no attention to it and it was by far the worst mistake i ever made so then about 2 weeks later i started feeling stiffness in my arm muscles and some symptoms of carpal tunnel so i schedule an appointment with a neurologist who sent me for a cbc and then sent me to have a emg study done which is a muscle and nerve study the never study was a peice in the cake comparied to the muscle study where the needle goes way way down in your arms and it hurts bad so that came back with carpal tunnel in my right hand and then about 3 weeks to a month later tops i started having the same problems on my left hand getting to where i couldnt do alot of typing then it went up my arms then it got really bad and started working on my knees and my balance situations so i made an appointment with another dr well they did a cbc again said my ana levels were high then i scheduled an appointment with a rheumotologist and he said oh your fine nothings wrong with you in my department you should go back to pcd so i did and by that time i started having knee pain and back pain but before all this happened i was having back in 2011 i started noticing that i had a knot on my left side of my neck went to the dr he said biopsy would be the best way to do it but until it got bigger the surgeon would not do a biopsy that node has not gotten bigger well on the other side of my neck another one popped up it might be just a fridge bigger but not hardly enough to tell it so i didnt bother having this one checked this was back in 2011 and from 2011 to late july 2015 i felt fine pain free no muscle spasms no nothing so im like well as long as they are small and arent getting any bigger than i dont see nothing to worry about well now the stiffness that i was talking about earlier that started in my neck has progress all over it was to the point that i was wondering if i had als or ms so after visiting with cape fear neurology and neurosurgery and after my cbc was done and the emg i was diagnosed with carpal tunnel in 1 hand but now it his progress into both hands and then the pain started back this time all over my body i have had 2 drs tell me that my ana was positive or high whichever you call it that was back in 2011 so i went to unc rheumotology and his name was dr rober burger he came in shook my hand and said your fine i dont see anything wroing with your ana that would indicate a autoimmune disorder so i was frustrated but evertyhing leveled off for quite some time up until late july of 2015 and then thats when all hell broke lose but i have been to several different drs who cant find the root of my problem as i continue to have join pain all over myoclonic jerks in my arms and legs upton drifting off to sleep and now i have 2 lymph nodes on each side they havent gotten any bigger but now a 3rd one was popped up and its painfull very small like a buckshot and i have pain in the left side of my abdomen and im concerned that this could be my spleen enlarging i have also had some small yellow spots on my skin which is liver issues and back pain is really bad and the fatigue omg is so bad at times i cant even get up and do my daily chores around the house i have been praying to god that he finds what is wrong with me he is the great dr and no other dr can diagnose like jesus christ but i fully understand your anxiety and worry about this situation as i am to visit with my cnp tommorrow and im going to request a dna double test to check for lupus as i feel like i have 7 of the 11 requirements to be diagnosed with lupus when all you have to have is 4 out of 11 to get the diagnoses but please keep me in your prayers and i will do you the same and i hope you are feeling better by now because im a little worried about lymphoma but i know god will take good care of me and he will all of us but all i need to know is what ive got and what kind of treatment can be done right now for the stiffness i take clonazepam 0.5 mg which helps out alot in the stiffness but i dont take this every day because i refuse to get addictive to it i am also on gabapentin for the pain which seems to marvolious job in keeping my pain down even though i think my dr needs to go up on a litte bit but it certainly is a good medication and not to mention i have been hurting in my side where the spleen is and in my feet knees and legs but with gods strength i know i will be fine but if their is anybody out there that is experiencing what i am and can give me a heads up thank you so much god bless all of us who are sick!

I have all these symptoms and have been diagnosed with fibromyalgia, Rheumatoid arthritis, chronic fatigue syndrome, sjogrens, and after all these titles and many doctors not being able confirm anything with tests but the RA, I finally found a doctor that tested me for Lyme Disease. I tested postive and unfortunately wasnt diagnosed with Lyme for over 30 yrs! I live in a state that they say doesnt have Lyme disease but we have ticks everywhere and they ARE positive for Lyme. Lyme disease can cause all of this and much much more but the testing is horrible. A lot of people test negative but are positive others, like me, test positive but the doctors will spend an hour telling you why your test is a false positive. There are no false positives. I could go on and on. Hope you all find out what is causing your symptoms. I just hope that if they arent able to find out that you get tested for Lyme. Demand the Western Blot test. It is only about 60% able to pick up Lyme but is better than the ELISA TEST.

Hi Kimberly here I have been going through the same thing for the past six months I cannot figure out what is happening I have narrowed it down to possible viral or bacteria or I am also looking at the fact that when they did a CAT scan 6 months ago 3 days after I was so sick and weak I asked if they use the same chemical for the CAT scan and they said no they were using a new type of chemical for the CAT scans they're supposed to give a better picture I am trying to stay on top of this I have seen several doctors switch doctors every time I show up in the ER with so much pain the say it always looks like it's some kind of arthritis the checking me out now for arterial arthritis which is big cell and can cause the arteries to be swollen which produces a stroke or possible heart attack . I keep having all kinds of flushes where my face and body will get really red seems to be letting out heat my body aches on a constant basis but it moves around my body it's so strange six months ago I was normal on the upside eating an anti-inflammatory diet is helping as well as green tea matcha,,,next though I'm going to be trying to drink some mud that's the holistic mud to clean and clear toxic waste. I am 49

Hello, wowe you got a lot of stuff going on. Have you ever had thyroid hormone levels checked? Or your Cortisol? Adrenals and thyroid play a role in energy

. Now, the lymph nodes. Have you had any type of images taken or biopsies.?generally speaking normal healthy lymph nodes do not stay enlarged for extended periods of time.They also should not be bigger than 2 cm or round. If at anytime you find one that is hard and doesn't move,request a biopsy. Also,they should not feel rubbery. Your symptoms range widely.Hopefully by now they have ruled somethings out for you and not just said I don't know so lets call it an autoimmune problem and dope you up. Your Ck and lipids are regulated by the International workings of the complicated metabolic system. I wouldon't get a high contrast CT or Mr I of your lymphatic system. Also, when they check your thyroid make sure they look at your FREE T3. They will tell you that is enough and it's not. T3 shows how well your body converts T4. I hope you get this resolved. Let me know if you have any questions. I hope you are better.

I was drawn to all of these posts as I have been experiencing things very similar in nature to basically everyone on here. What doesnt make sense though, unless just coincidental, my symptoms started after possible injury related activity.

First and foremost I was diagnosed with  CML- Chronic Myelogenous leukemia at 17, I am now 28. It is in complete remission. I saw my oncologist 9/12 and my blood work was perfect, no abnormal values and they do a test for the leukemia cells which was completely negative for the second time. CML is treated with daily oral chemotherapy lifelong which keeps it in remission. Usually when they run the test that tests for the leukemia cells called a BCR-ABL there is always a very small amount detected in the blood but it is considered in remission because it is not enough to cause any problem however as I said twice now (6 months apart) the testings were negative which most people do not achieve.

When asked questions about how I feel it is hard to answer because I feel like Ii could be feeling ill and just not recognize it because it is normal for me.

I have terrible allergies, the medication I am on called Tasigna or nilotinib, can cause flu/cold like symptoms and sinus conguesion. It can also cause muscle and back aches, headaches and a whole list of items. I eat pretty healthy, I take care of myself  I work out every day and I have also had an issue with headaches my whole life. Especially now when the weather is rainy and yucky I am achy and tired and get headaches. Some days I wake up feeling like I could run a marathon, other days I wake up feeling like an arthritic old lady but there is nothing I can do about it, I need this med to live, it isnt debilitating and could certainly be worse and I am not going to miss out on life because I feel fatigued, I jusy push through it and go about life. With that being said  I feel like if I do get symptoms of fatigue or whatnot beause of an illness I may not recognize it due to it also being "normal" for me.

What started was for about a month or so my back has been tight and sore and I have had a lot of low back pain- again, not abnormal for me but seemingly a little worse. I also believe I may have tweaked it wrong at the gym from improper lifting, plus I just moved so I have been moving around heavy furniture, objects and boxes. But no big deal.

Last Monday night at the gym I did shoulder exercises, and I was getting more sore when going to the gym due to moving, I have been busy and off of my routine, only going like a day a week when I'm used to 4-6. Last Tuesday 9/20 I woke up with a sore lump on my left shoulder right beside my spine like in my trapezius area, it bulges and almost looks just like my spine how ur cervical vertebrae stick out, when i bend my head forward. Its about the size of a grape. It is firm but not rock hard, it seems like it moves a little bit but not much or maybe I am just noticing the skin around it moving, with that being said if it is moveable it is so little its not completely recognizeable. Either that day or the next day, I forget I found another one. This one is straight up from the first one, beside my spine right at the bottom of my hair line. It's characteristics are slightly different. It is about the size of a pea and it is firm but doesnt feel like a rock or a pebble, no rough edges and doesnt seem to move. No other symptoms feeling like it may be neck tension etc. I have had a lot of changes in my life recently. including moving, a lot of stress, starting a new job, falling out with my mother etc. plus I have had muscular injuries in the shoulder/trap areas in the past.

Then last Saturday Morning I woke up sleeping on my neck tilted to the left, all kinked up in a weird position and it was sore,  I noticed a lymph node right below my left ear on my jawline. It feel pretty firm but not rock hard with no jagged edges or anything and it seems to move some. It is not painful, neither is the small one under my hair line however the one on my trap area was very painful, but it isnt anymore so I am not sure if it was just the whole muscle around it that was sore was working out or if it was the actual lump itself. Then just this past Monday I was at my friends house and we were feeling around to make sure we didnt feel any other nodes, and we diligently checked she is a CRNP, and nothing. Then suddenly just Tuesday when I woke up i felt them all the way down the left side of my neck to above my collarbone. Those are all soft, squishy and very moveable.  I am not running a fever but I also all my life have never really gotten fevers especially now that I am on the oral chemo med, my immune system is compromised. Even when I have had sinus infections, bronchitis, pneumonia I never really had a fever and if i did it was low grade in the 99's.

I had a  CT scan done yesterday and it came back that I had 2 nodules and enlarged lymph nodes on both sides of my neck...... which we already knew. So it basically told me nothing. The radiologist said it could be from infection/inflammation although at least as far as  I know I dont feel sick at all. None of the nodes or the nodules are red, pink, warm, swollen or inflammed and they dont have a head or anything on them like a boil or abscess would.

Another weird thing- Friday night I was in the squatting position doing something for a long period of time. I have bad hips, they are out of alignment and I have been told that by a physical therapist and been told may times that and my short stature (I am 5'0) and 104lbs which also is why my nodes are more palpable, and I lack a large curve in my back causes me back pain.

But Friday after being in the squatting position for sometime when I went to get up my right hip popped and hurt my my leg went numb with symptoms of sciatica. I had pain in my low back that radiated around my groin and down my leg and my foot felt tingly and numb like it was asleep. This lasted for 2 days. Taking 100mg of gabapentin did help this feeling completely go away. Now I dont have it in my right foot anymore but it feels like it is in both feet, they feel tingly and numb like they are falling asleep frequently and when I woke up this am and yesterday am my hands and arms were asleep and I had to shake them like ya know when they are asleep like ya do. I was sleeping in a neutral position though on my back with my hands at my sides, and on a memory foam pillow. The sensation isnt as bad as what it was in my hip when it first happened friday, it is less worse but in more areas as I said now both feet and hands sometimes, moreso my feet. Also I took a flexeril the other day which knocked me out and made me feel like dirt the next day, and I have been taking a lot of klonopin because my nerves are really bad over all of this. I am also very sensitive to meds. My lower back is moreso tight than pain really, tight and stiff and then the numbness and tingling going down my legs.

My family doctor sent the CT to my oncologist who follows me for my leukemia and he is to call me today after lunch time sometime to go over what the plan is going to be. There's just so many different things going on and so many possibilities of what it could be????

I was thinking Mono, I dont have the acute illness but I have heard of people who had mono and only had swollen lymph nodes and/or were a little tired.

Also though of Guillan-Baree or CMV- I do have the herpes virus, as I have for years. Also thought of possible lymphoma? or Sjogrens. I do have a dry mouth occasionally, I feel more so lately than usual and my eyes are very dry, have been for years. I started wearing contacts in 2011 and I had to try like 5 different pair until we could find a pair my eyes tolerated. They dry out quickly and I have to replace them often before 30 days is up and there are many days by the end of an 8-9 hour day they are bothering me. I also know people who can sleep in theirs etc. I can not even close my eyes for 5 minutes, literally 5 minutes no exaggeration without them being extremely dry.

Today I feel like I feel wiped out, headachey, more achy in the back, a little dizzy and just blah.  However Monday I literally had a panic attack over this, I have been having extreme anxiety, exrremely stressed out and it is raining and bad weather here so who knows if the feeling is from being overwhelmed and anxious or really illness.

Try looking at Guillain Barre Syndrome I have had very similar symptoms since June and I'm booked in for a lumbar puncture/ spinal tap tomorrow. I have been in hospital recently as this thing has just taken over me and for me it feels like I'm partially paralysed. I have been so frustrated not having a diagnosis but fingers crossed I will get one after this!

Guillain Barre syndrome is definitely one to look up and you not heard of it as it is a rare disease

sorry I coulndn't read all that.  can you just list symptoms for em? talking about neck pain and lumps and exreme fatigue, head aches, some slight fever; generally sick.  thinking lymphoma (of you)  Also adrenal glands test TSH.  write back

Yes, I've had a lot of those problems about 2 years now; and doctors dismiss me too. I wonder about lymphoma with you and me.  Hope to hear from you.