Help! What do I do next?

Posted , 7 users are following.

I've been dealing with PBH issues for several years now.  The issues were gradually getting worse.  In January I had a bout of prostatitis and the Doc commented that the prostate felt enlarged on DRE.  The prostatitis subsided and we tried Uroxatral which made me dizzy.  We then tied Cialis and I can't say I noticed much improvement.  They then recommended a bladder scan.  Instead I decided to pursue a PAE and had it done in April.  my symptoms improved minimally.  I wised up and had the bladder scan done in August.  The Uro noted that my prostate did not appear enlarged and while we could see my median lobe protruding a bit  into the bladder wall.  Everything looked great.  He decided to approach it from a possible OAB standpoint and put me on  oxybutynin  which did absolutely nothing.  We then decided to try Proscar after a friend recommended it.  A week of that and I noticed a marked decrease in my libido.

  I have been on testosterone replacement therapy for 3 years and I am thinking it could possibly be causing or exacerbating my BPh.  I tried greatly reducing my dose and even stopping but I felt horrible when I did that.

  At this point I am at a loss as to what to do.  

  Any thoughts??

0 likes, 12 replies

12 Replies

  • Posted

    Good morning, your situation sounds very familiar to mine. My prostate is on 45 gms, and I had a PAE done Jan 2016, and got no benefits from. Meds do not help either. I also have the median lobe, which seems to be my main problem. I have also dealt with the prostatitis issues off anf on for several years. 

    My next step is going to be FLA, it is an expensive procedure, but the science behind it is sound, and may be the only way to actually get rid of the median lobe. The Doc who is doing it says that it may also help with the prostatitis, since the laser will destroy infection, along with the tissue. He is also studying the possibility of injecting an antibiotic directly into the prostate, while doing the procedure.

    I told him I would be the guinea pig, and see if it works lol.

    Joe

    • Posted

      Hey Hank, its pretty much the usual, getting up 2-3 times per night to pee, having to  get up during a meal to pee etc etc. Never feeling like your bladder is completely empty, no matter how much you pump, and force it out little by little. Then there is the dreaded dribbles, after you put your little buddy back in your pants. Theres nothing like that feeling of urine dripping down your pants leg lol. And thats all when I do not have an infection. When I do have an active prostate infection, its pain while sitting, right lower back pain,perineum pain, and just a general feeling of no energy. And the bad thing is, until you have a full blown infection, it comes on so gradual, you do not realize it until its too late.

       

    • Posted

      Hi Joe, I can see you have your hands full. 

      I would suggest to you like I did to ananoman below (meds + liquid control) as a temporary relief until you have the FLA which is showing good promise.

      Hank

    • Posted

      joe74831, Can relate to the dribbling issue, and I've never played basketball in my life.  That said, dribbling has been a relatively new phenomenon for me.  I'm trying a slight dietary modification that is based on conventional medical wisdom.  I am a coffee addict.  The so-called wisdom is that caffeine aggravates / overstimulates the bladder.  I've gone cold turkey, and while it's only been two days, I've noticed a positive difference already. Hope this helps.

    • Posted

      Good morning Alan, I used to be a coffee addict myself, as a 30 year Police Officer, every store you go in, they expect you to drink coffee lol. However I have limited myself to 2 cups per morning for the last 6 months, and have not noticed any real change. I am glad to hear it is helping you tho, every little thing that helps is good.

      I am scheduled for the FLA on Oct 19th, Really hoping I have the results a lot of the other men on here have had. If I do it will most certainly be worth the money.

  • Posted

    Having had Prostatitis for 3 years now and had a TURP 18 months ago, and now told my Prostate has grown again and can't now self cath but back on catheters which keep blocking. They now have told me I need another TURP but I think I now want my prostate removed and that would get rid of the problem with no future problems getting catheters in.

  • Posted

     I had prostate artery embolization by Dr. BAGLA almost a year and a half ago and I have done amazing. Numerous patients on this forum have had this procedure and it's much less invasive than even the laser ablation. There's no need for urinary catheter or hospitalization and this procedure is fast-growing to replace all of the invasive options require placing a needle or catheter through the penis or through the rectum into the prostate .having had this experience and talked about this on this forum over more than a year, many other patients and email me and had similar success.

    • Posted

      I also had a PAE done by Dr. Bagla.  Unfortunately my improvements were minimal
  • Posted

    What BPH symptoms are you getting ? Hank
    • Posted

      Frequent need to urinate.  I wake up 2-4 times a night now to pee.  Also often times my stream is more like a dribble.  At nights there are times when the pee doesn't even come out unless I do kegels to push it out little by little.

    • Posted

      Hi ananoman. I can see why you need help.

      Peeing too often may be caused by too much fluid intake. How much is your total daily urine volume ? Do you have retention ?

      You may want to try Doxazosin. I tried Cialis and it did nothing but Doxazosin does help a lot. Cialis may help with the libido if you continue Proscar. Or use Viagra.

      Hope this help until you can find a better solution.

      Hank

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