Help with abnormal tests please

At the moment I have tingling/burning hands and feet - neuropathy. Funny things is I checked the nhs web site for Sensory Neuropathy and listed in the causes:

conditions caused by overactivity of the immune system, such as rheumatoid arthritis, lupus or Sjogren's syndrome

It does make me so angry, they appear to be writing you off - at 32.  Good doctors listen to the patient and there are so many good doctors out there but then there are the ones who just seem to want to clear their waiting lists and, it seems to me, that they don't listen  Have they never heard 'a stitch in time saves nine'?  If they listened to you [and other patients with similar problems] then you wouldn't have to keep returning again and again.  False economy.

I'll get off my soapbox now!

 

I'm still in contact with pals but I have also contacted icas, I intend to write a very long detailed letter of complaint to my gp surgery today along with evidence from the nhs web site regarding the blood tests and symptoms and their possible causes but I have a feeling it will be swept under the carpet.

I guess my other option is to move to another gp surgery, there is a closer one to my house that does seem to have good ratings on nhs choices website, it may be more useful because its closer to take my children too.

I couldn't help myself, anger kinda boiled over and I wrote a 4 page letter of complaint with some very well researched stuff regarding the b12 and iga and autoimmune diseases. I handed it in this morning and had a call bakc from the practice manager this afternoon asking me if they could share the letter with dr-specialist guidance people.

hmm so either they cannot disregard what I'm saying and want to help or they want to cover their own backs.

Manager said she will contact me towards the end of the week with further information.

All good wishes. I think you did absolutely the right thing. If they are good GPs they will take it seriously - if not, you shoulf look for another practice. Btw ask for a written response so that cannot weasel their way out of it.

Keep us posted- and best wishes!

I got a print out of the latest abnormal results: 23/10/14

!FBC - Abnormal - No action

! Red Blood Cell Count 5.57 (4.50-5.30)

!B12/folate level - Abnormal - No Action

!serum Vitamin B12 - 1168 (191-663)

!Immunoglobulins - Abnormal pt contacted...

IgG - 10.7 g/L (5.4-16.1)

IgA -  4.14 g/L (0.80-2.80)

IgM - 0.88 g/L (0.50-1.90)

Not sure how many abnormal tests they want from one single blood tests to actually do something.

Small update:

My GP surgery decided to send the complaint letter I wrote on to a Rheumatologist for guideance, I recieved a letter from my GP this morning asking me to make an appointment to discuss the Rheumys reply.

Hey all,

Still nowhere near to any answers, The Rhuematologist replied to my GP saying he didnt think it was connective tissue related he would see me as an outpatient if my GP agrees or possibly send me to an Immunologist. SO my GP decided to question the nearest Immunologist which again is Birmingham and I'm still awaiting their opinion, what is bothering me is what exactly is my Gp saying to these specialists, I don't think I trust them to include all that is actually going on and knowing them they will get only half the story which in all likelyhood will start with "this patient suffers with anxiety and thinks he has...."

I asked for a copy of what has been sent to immunology and to which immunologist it has been sent to but have had no reply on that score yet either.

Are you seeing a neurologist?