Help with anxiety

Yes that’s exactly how I felt, especially as I seemed to be getting a lot of attacks either before or after the evening meal. Also I was wary of eating certain things because it would be more likely to make me sick. I haven’t had an attack for just over a week so I’m starting to dare to eat again.

 Oh, I am so sorry for you. I have been at the same place just waiting for an attack. I lay down much of the time because it seems I don’t have a tax unless I am standing up. Two days ago I hit the wall with my anxiety and fear and started on pack soul and lorazepam. I have never ever taken these drugs but I am finally getting some rest. I have to wonder if the high anxiety was bringing the attacks on and when and attacks started if my high anxiety was making it worse. I’m kind of new at this but right now I’m getting a little respite with these drugs.

Do you take a motion sickness pill? I always pop one in my mouth as soon as I feel the attack coming on.

Hi,

I totally understand have been dealing with the same. My ENT prescribed me Ondansetron 8mg 1/2 tablet every 8 hrs and that has helped...If some days I feel like it's going to be horrible she has said to take 1 tablet. Just a thought of being nauseas everytime you eat is not good and have those days....Hope this

Hello Christine,

i certainly have felt the same about meal time and anxiety.  What has helped me is monitoring what I eat. I keep my daily salt intake around 1000 mg. I keep my carbs around 50. I watch the amount of sugar in everything I eat. I eat plenty of veggies. I eat chicken, fish, turkey, pork(not bacon) , eggs, and lamb. I also drink plenty of water and I exercise. Also meditation may help with the anxiety. Just some deep breathing. 

Everybody is different, but I have found this helps me. I still have the attacks but they don’t last as long and are not as bad. Stress is a big trigger and I find it the hardest to control. Also getting a good nights sleep I find helps me. Regular hours. Also small doses of Valium may help with the anxiety. 

i wish you the best. 

Jim

Hello Christine,

I second Jim’s advice. I don’t think you can ever eliminate the atttacks, so having a plan to deal before and during the episode helps. My MM has progressed from hearing loss to nausea and early stage vertigo. I take betahistine twice a day at 36mg and watch sodium intake keeping below 1500mg. I also exercise. I’m about to try some natural patches someone else recommended in an earlier post. They seem to work for some people. And that’s the thing with this disease; what works for me may not work for you. Keep the faith and we’ll be thinking of you hoping you get some respite. The biggest lesson I’ve learned is that you need to take full ownership of this disease. Ask questions, monitor what triggers episodes, and be open to options. Have a safe weekend.

Hi Christina,

I too take ONDANSETRON.  They don't like to give you this and I found out why - it is very expensive.  So insist.  My own doctor was very sympathetic as she has bad reactions to anaesthetics and had taken it for that.  It is really good for sickness.

I've taken STEMETIL as well and find that very good but you have to go quite easy on it as there are side effects. My GP being very understanding gave me STEMETIL INJECTIONS which my husband gives me when I start an attack.  Previously I would ring the GP and then have to wait for one to come out and give me the injection by which time I was really bad, puking etc and unable to move.

I tried BETAHISTINE - totally useless.

She then put me on CINNARIZINE which was much better although after about a year on it I started to get side effects and had to come off it.  It had been the best thing so far.

Finally, my husband researched online and found there was a study in Australia (which of course being British I couldn't be part of) trialling VIAGRA.  So (In desperation as I was having attacks every other day) we googled the amounts and tried it out.  A MIRACLE.  It is by far the best thing I've ever taken.  I still get attacks but they are much much milder and less frequent.  I can stay standing upright (no more crawling to the loo on hands and knees) and am not often sick.  So I combine 25mg of viagra at night with two stemetil, 1 ondansetron and 1 phenergan in the mornings and touch wood, this regime seems to work best of all.  The moment I feel an attack coming on my husband gives me a stemetil injection and 9 times out of 10 this knocks it on the head.  BRILLIANT.

It may not work for you, but I see in the papers that viagra is about to be purchasable over the counter so you would need to send a bloke to buy it for you.  It works by dilating the blood vessels in your ear.

Get yourself to an Upper cervical chiropractor, and get your "head on straight." Dr Burcon on u tube, can help educate you. All that has helped with the anxiety, exercise when possible and continue to talk about your issues with others, such as this forum.No cure just maintenance for life.