Posted , 4 users are following.
Looking for advice. I didn't have a migraine until I was 30 where I had quite a few in a short space of time and then they went away. I'm now 36 and for the past 6 or 7 months I have been debilitated by migraines most days.
My GP and I have tracked it down to a drop in blood pressure when I stand up. I always know when it's going to happen - I stand up and get a whooshing, pounding noise in my ears and feel like I'm wearing a heavy diving belt around my waist. The thing is my symptom really vary.
Most of the time I get occular migraines - I get the precursors above and then 20 mins of severe visual disturbances and nothing else (sometimes this can happen 3 times a day, which has an impact on my ability to see my computer screen to do work). In these instances I get no other symptoms, no pain, apart from the next day where my head will hurt if I cough.
Then I can also get the aura followed by 2 day headaches.
Rarely I get the above with gastric symptoms.
Sometimes I just get the visual disturbances on one side of my vision and the pain occurs on the opposite side of my head.
Then rarely (but becoming more frequent) - like the one I'm currently suffering - I get the precursors followed by a thunderclap headache that goes on and on and my right foot goes floppy and I can't walk on it for a minute or two. This headache started at about 2pm, it's now almost 10pm, still raging with no response to painkillers and I have a rising temperature and sweats because it is so bad.
A few bits of background. I have bipolar disorder but am currently medication free for this. I also have suffered from extreme acid reflux following gall bladder surgery for which I'm supposed to take daily omeprazole - but I only take it when needed as I know it can cause headaches. I eat a vegan diet but have my bloods regularly checked and am not deficient in anything. I have tried triptans in the past (namely zolmitriptan) but had a massive allergic reaction and had to go to hospital.
Two GPs I've seen have told me that there's nothing to be done as it's just a blood pressure drop and I have to live with it. I have private health insurance - is it worth me getting it investigated further? I don't want to cause a fuss if I'm going to get the same reply.
I have just got a really prestigious job and also have a music career and both are being adversely affected. I just want my life back.
0 likes, 9 replies