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Help with fibromyalgia

Posted , 4 users are following.

jayx6
jayx6

hi my doctor recommended this site to find out a bit more about fibromyalgia, heres my story

about 3 years ago I started having trouble with my back, I worked long hours in a warehouse where I had been employed for 10 years, about a year and a half ago my soreness started to get worse, I also started having trouble with my stomach and constantly feeling sick and having to use the toliet everytime I ate, I went for a MRI and it came back clear, and I am waiting on the camera test for my stomach, I am currently signed off work because of my symptoms which include chronic fatigue and being sore from my neck down nearly every single day.

I have also had to totally change my life because of this illness, I had to give up my house as I couldn't afford to live on my own and I needed help with a simple things like getting dressed, my doctor has recently mentioned it could be fibromyalgia and has told me to go online for advice about it and to try find a support group as he doesnt know much about it himself, I am only 30 years of age and the past couple of years have been very hard, I would love some advice on how to cope with this as I am on anti depressants for the first time in my life because of how bad I feel.

thank you

0 likes, 3 replies

3 Replies

  • Mrs_Hobbles
    Mrs_Hobbles jayx6

    Posted

    Hi Jayx6, so sorry to hear what you've been going through! it's a tough illness and really most people will say pace yourself, stop doing things when you feel fatigue coming on, also if possible don't sit for too long periods, as you'll stiffen up and it's painful cranking yourself up again. Forget about showering everyday, only shower when you know you've nothing else on that day, because you will be wiped out afterward! Some of us go to rheumatologists, but if your doctor is up on the illness, you may not feel the need. Some of us are on Amytriptaline, which can dull down the pain levels and help you sleep. They are actually an anti depressant but work for fibro too. My rhumy tried to put me on anti depressants but I told him I'm not depressed, I'm in chronic pain, so another consultant put me on them. I'm not sure how much you know about the illness but if you don't have enough info here, write back and I, or others, can fill you in more. Where are you living, it would be great to have a support group near you, just so you know you're not alone, plus this group too! take care xx

    • jayx6
      jayx6 Mrs_Hobbles

      Posted

      thank you for the quick reply, I was on amitriptyline myself but it completely wiped me out so I stopped taking it, at the moment I'm on mirtazapine and painkillers, I am living on my own but I am hopefully going to be moving back home soon as I really do need more support

      my doctor isnt clued in on fibromyalgia so he has told me to go and try find some more about it, I live in banbridge, northern ireland. thanks again

  • jayx6
    jayx6

    Posted

    just a update on my situation; I left my full time job over a year ago and signed onto universal credit, I then attended a medical set up by the dwp and they put me in the work related support group, 3 weeks ago I had my second medical with them and got my decision today, they have found me fit to work, which I cannot understand as I explained I am still in the process of being diagnosed with fibromyalgia and I am on heavy anti depressants as I haven't been sleeping much and I am in constant pain; I am going to appeal this decision and get my doctor to hopefully write me a letter to support my appeal.

    Does anybody on here have any advice? I know I am not fit to work otherwise I would not have left my long term job when my condition started to deteriorate, I have been on so many different medications this past year as the doctors have been confused with what is actually wrong with me, only the past few months has fibromyalgia actually been mentioned, is there a way I could get a diagnosis quicker or what should I do? this decision today has really upset me and I have a meeting for a steps to work program this friday at the job center which I have no choice but to attend, obviously not having and official diagnosis probably didnt help me in regards to my medical decision but I made it quite clear how much I am struggling recently, getting out of bed is a full time job at the moment, all I have is antidepressants and cocodemal to help me, I am really struggling mentally now with all this stress on

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