Help With Getting Diagnosed

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Hi Emmy,

when you go to see your gp, ask for a referral to your nearest cfs/me specialist service. explain that you feel it could be this and just want clarity. to be eligible for referral, you have to have blood tests coming back normal. acid reflux can be part of cfs/me -not separate and migraine can be part of cfs/me-not separate.

can you remember a trigger of any type? virus or trauma etc?

blood test results need to be no more than 3months old or you'll need to have them again.

Beverley

Sorry to hear you are struggling. It's often a long process getting a diagnosis. Usually you only get the diagnosis once other conditions with similar symptoms have been ruled out by blood test (like anaemia, under active thyroid, diabetes etc etc). Once I had been sent for every blood test under the sun and they said they weren't sure what was wrong, I took some literature detailing the symptoms of chronic fatigue and asked them if this was a likely diagnosis. If they are still reluctant maybe get a second opinion and be firm with them as to how much it is affecting your daily life. I had to go to them to suggest the diagnosis - they will rarely come to you unfortunately. If you have a decent well balanced diet, good sleep and good at managing your daily stress levels then there isn't really any reason they should prevent the diagnosis. The diagnosis can be useful with stuff like work if you need reasonable adjustments put in place so maybe explain your reasons behind it as well? I was lucky to have a good doctor who understands but it still took years to come to this conclusion. Good luck!