Help with hyperthyroid.. surgery or no?!?

Posted , 4 users are following.

Good morning all!

i started going to the endo dr back april of 2018.

im 31 yrs old. no family history of thyroid problems except my uncle on my dads side that i am aware of.

my blood work results :

T3: 389.1, TSH:<0.01, T4 FREE: 3.78.

started taking methimzole.

6/5/18 results: T3: 353.9, TSH: <0.01, T4Free: 3.56

7/30/18 results: T3: 157, TSH: <0.01,

T4 FREE, 1.5

11/30/18 results: T3: 199, TSH:<0.01, T4FREE, 1.9, THYROID PEROXIDASE >900

3/29/19 results: T3: 326, TSH: <0.01,

T4FREE, 3.6, THYROID PEROXIDASE: >900

7/10/19 results: T3:282, TSH:<0.01,

T4FREE:2.7

i had a biopsy done on the left nodule in may 2018 it was benign.

my QUESTION to anyone out there is should i be thinking about surgery?

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2 Replies

  • Posted

    Jennifer, when posting lab test results to this Board, it helps if you post the figures for the range of normal for each test for your lab. These are usually beside your results. Labs differ in normal ranges so we need to know the ranges for your labs.

    Besides the Thyroid Peroxidase test, were any other tests done to determine whether you have Graves or Hashimoto's as a cause for your hyperthyroidism?

    Usually for nodules, surgery isn't done unless they are malignant or blocking other tissues.

    I have Graves disease and was put on 10 mg of Methimazole (same as Carbimazole in UK). While my Free T3 and T4 normalized in mid range immediately, my TSH remained at less than 0.001 for two years. I was concerned about this and read a research article on the benefits of using Regular L-Carnitine for hyperthyroid patients and asked my boss, a Genetic Metabolic specialist about it. He said, "Well it won't hurt you" so I added Regular L-Carnitine, Acetyl-L-Carnitine, vitamin D and other supplements to my treatment and that was the first time my TSH move upwards. Eventually besides normalizing all my results, my antibodies tested as non-detectable and I was able to stop all meds about a year ago, although I continue to use the supplements, though not all of them. I see a pattern in Graves patients like mine where they can't get their TSH to rise eventhough the meds normalize the excessive thyroid hormones. In Hashimoto patients, I see a pattern of their TSH rising quickly on antithyroid meds like Carbimazole and going hypo very fast and then being given Levothyroxine when they are hypo and going hyper very fast because Hashi patients are more sensitive to prescribed meds. One Hashi patient I know of on this Board was able to regulate her disease by taking 3,000 mg of Regular L-Carnitine only.

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