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Help with pain

Posted , 9 users are following.

emily44821
emily44821

Hi

I'm 18 years old and have had chronic fatigue for 2 years. I'm currently in unbearable pain in my legs and head, neck, back. I can't sleep and I'm struggle to do anything during the day or night. I am on pregabalin 50mg twice a day and it's not helping at all, neither does any pain killer I have taken e.g neproxan, paracetamol, brufen. I'm really struggling and would appreciate advice on how you cope with the pain

1 like, 13 replies

13 Replies

  • russ151
    russ151 emily44821

    Posted

    Amatryptline can help with pain and sleep you would need to see your GP also magnesium sprays may help  with both I use magnesium citrate before bed Nytol Kalms may help. You probably need to work with your GP or your specialist for meds also I have used a chiropractor massage for pain in neck and shoulders if i think of anything else I will let you know
    • russ151
      russ151 emily44821

      Posted

      Use meditation to relax you need to calm the central nervous system down or anything you can think of to relax I understand it can be difficult but try not to stress I have been there in real pain like yourself it does get better slowly  and with you being young it hopefully will aid your recovery 
  • sara95803
    sara95803 emily44821

    Posted

    Hi,

    Is that the maximum dose of pregablin u are on? If not there may be room for Drs to increase dose. Also amitriptyline does help and can help to sleep too I am only on a low dose now and after about an hr am out for the count!

    I take tramadol or acupan for pain and methocarbamol which is like a muscle relaxant. Depends what sort of pain u are having. Also I've found Chinese acupuncture really helpful for certain things.

    Hope that helps but makes me sound like a right druggy! Ps I have lupus and arthritis am 37 X

  • jackie00198
    jackie00198 emily44821

    Posted

    You've gotten some excellent suggestions from others in this forum. If, by any chance, you're in the U.S., in a state that allows medical marijuana, you may want to try that. If can be very effective for some kinds of pain.

    • phillis55984
      phillis55984 jackie00198

      Posted

      I'm glad you mentioned marijuana.  That is one of the things on my list to try and I had forgotten about it.  We have a pain specialist in the local clinic, and I'm going to talk to her about a prescription.  Medical marijuana is legal, with a prescription, in my state.  So thanks for the reminder!

    • jackie00198
      jackie00198 phillis55984

      Posted

      Also, Phillis, there are different strains of marijuana that are good for different problems. So the prescribing physician should know about this.

  • janet71271
    janet71271 emily44821

    Posted

    Hi Emily. Sorry you are also suffering this horrible disease. I cannot tolerate any pain medication. I have sort of learnt to live with it .but does overwhelm me some days. I have been on gabapentin for yeS but it has never helped much other than control migraine I continually had. I was on pregabalin for a bit but had terrible adverse effects .

    Best thing is to discuss with your gp . Some go to pain clinics. Epsom salts in a bath. Sit for 20 mintues helps some people. I can't sit that long in a,bath but I can manage 5 minutes 10 at a push.

    Hope you can soon get some relief x

  • phillis55984
    phillis55984 emily44821

    Posted

    Does your doctor know the degree of pain you have?  Does he know you can't sleep?  If not, talk to him/her about it.  The only other thing I'll mention is that I have found a hot bath helps me a bit when I'm aching a lot.  

     

  • david59056
    david59056 emily44821

    Posted

    Hi Emily,

    I know exactly where you are with your pain. You sometimes wonder will it ever end. Well, the answer is Yes it does finally and you look back and find it hard to imagine what it was truly like.

    In the meantime, what worked for me was going out to Spâin and Southern France. I always found the hot dry heat acted like magic. 

    It is probably why many years later I live in the South of France. Even the cold and snow is a dry cold and snow.

    I know it is not always easy to afford to visit such places but if you can, try it, you might find it works.

    Good luck

    David

    • phillis55984
      phillis55984 david59056

      Posted

      I used to find hot dry heat helpful, too.  Now I have trouble with any kind of heat above the mid-70's.  Thank goodness one of my kids gave me an air-conditioner that keeps one room cool!

       

    • janet71271
      janet71271 phillis55984

      Posted

      I am the same with heat Phyllis. Hot weather really exacerbates my pain . Plus sunshine makes me feel really depressed . X
  • Patrickgeoffrey
    Patrickgeoffrey emily44821

    Posted

    I do know how you feel, I haven't found anything that helps, I guess I have just developed a high tolerance to pain, I just try not to think about it, I do hold down a full time job but working is hell for me but if I don't work no one will pay the bills. I can't collect disability because I have never been given a diagnosis.One specialist said my problems are probably caused by a virus but there is no test to determine which virus and there is no treatment. I know that it is the flu virus that triggers my relapses, I am having an extremely hard time walking right now,my muscles are heavy,sore and stiff,walking makes me feel nauseous and when I stop I start shaking, I get pressure headaches that also effect my ability to walk but I don't suffer from fatigue and I sleep well so in that way my symptoms are a little different,post viral syndrome better describes what is wrong than ME or CFS,but they are all related but are only names for the symptoms but not official disease,the center for disease control does recognize CFS and has guidelines for a diagnosis but there is no test to say you have it and no official recognize treatment research has,a long way to go,there is a lot of info on wiki it is worth reading

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