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help with results & diagnosis?!

Posted , 5 users are following.

ella53317
ella53317

Hi guys,

i have been dealing with health issues for a long time now,

and unfortuntaley the symptoms i have been experiencing over the last

couple of years have only become worse:

- Brain fog

- Depression

- Stomach pain & heart burn

- Severe mouth ulcers to the point where i cant eat

- Thinning hair

- Chest pain

- Headaches & Blurry Vision

- Muscle Weakness & Bone Aches

- Extreme Fatigue

The list goes on! unfortunately because i go through phases when my symptoms become extremely apparent & then they go away for a while the doctors cant work out whats going on. I am at the point now where my GP thinks im a loony & prescribed me anxiety medication telling me i have made it worse in my head. I had one doctor who was sure i have an autoimmune problem but when my blood tests came back negative or within the normal they sent me away and said i have fibromyalgia. I know my body very well, & i am sure after all these years that there is something that is going on undiagnosed. Any help or suggestions would be great. i have listed below some abnormal results that were overlooked in my blood tests..

Low B12 - 195pmol/L

Low Vitamin D - 35nmol/L

High Bilirubin - 17umol/L

High CD56 NK Cells - 0.65

Low DHEAS - 3.5umol/L

Low ESR - 1mm/hr

0 likes, 3 replies

3 Replies

  • margaret22116
    margaret22116 ella53317

    Posted

    Yes it definitely looks like an autoimmune profile. I struggled for years with similar issues until I was diagnosed 12 years ago. You need to see the right type if specialist to get a diagnosis. Who are you currently seeing who dismissed rhe idea of auto immune disease?
  • marlene21102
    marlene21102 ella53317

    Posted

    Ella ,have  you had your Thyroid checked out for Antibodies ,that can be autoimmune . ? 
  • vicky89033
    vicky89033 ella53317

    Posted

    hi this could be autoimmune but it might be worth looking at the lymes disease forum ive been in exactly the same situation for nearly 4 years and have become very ill over the last few months. i had flares of it being realy bad then periods were i was symptom free but now its every minute of every day with new symptoms aswell. as its undiagnosed therefore no treatment its obviously going to have got worse. dont let your doctors have you thinking its in your mind mine had me at that point even when i lost 16 kg they put it down to anxiety which ive never had and i know if my body was better i would have no worry in my life at all- good luck
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