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Hi everyone. My son is 14 and been diagnosed with Arnold chiari malformation type 1 with syringomyelia (sryinx). Although he had previous symptoms ( I didn't know at the time were associated) it was found incidently via mri for bells palsy. He often loses control of his limbs, suffers headaches, something her refers to as room spin ans bowel issues. It has been confirmed he has fluid on his spine and brain. I'm so deeply worried about this. I've little knowledge of the condition and Google tells you everything worse case scenario. Any advice on how to best care for him with this condition is appreciated
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