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Hemi-facial spasm

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jess37744
jess37744

I was diagnosed with HFS when I was 17, I am now 20 years old and have been getting the Botox injections for 3 years now, when my face was twitching at its worst I ended up having 3 injection in one side of my face which caused drooping of my eye, cheek and mouth, I then went back to having one injection. The one thing I have found that has helped my HFS is cutting out all alcohol (no easy task) this has massively improved my spasm! Well worth a try!

2 likes, 16 replies

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  • AyannaButler
    AyannaButler jess37744

    Posted

    Ask your neurologist about high csf pressure and its relation to hfs. I got a spinal tap (lumbar puncture) to test my pressure, It was high and I was prescribed diamox (acetazolamide) and the full contractions of the left side of my face have stopped. It has only been 2 weeks So not sure if this is a cure but it has helped so far.
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