hemi facial spasms
Posted , 6 users are following.
hi
my name is chris, im 33 and have been suffering with the spasms for the last 5 year
when my spasms arnt that bad it can be something from a bit of twitching on the left hand side of my cheek with minor headache, when there at there worst its as if my whole head is affected as though someone is shaking it with there hands and i was just wondering if anyone else is affected in this way. ive had the mri scans which show the blood vessle trapping on the nerve but when i mentioned the shaking off my head to my surgeon he said this dosnt normally happen with hfs so he seemed very unsure when talking about the surgery...
would love to hear back from someone as this could make my mind up about the operation
1 like, 20 replies
tomliu
Posted
where did you have your MVD done? Toronto? If so, can you please let me know which doctor?
thanks,
tom
Roseann
Posted
I wonder whether you've found the Facebook page entitled Hemifacial Spasm International Support Group? There are quite a few Candians posting on that forum and you may find the information you need. Just make your own post and ask the question about surgeons in Canada. My own experience (having had a successful MVD last year) is that it's highly important to get a very experienced MVD surgeon, and one who can furnish you with his personal operation rates and success rates. You should be looking for 80% complete success and 90% who have improved. And for a surgeon who does at least a couple of these operations every month over a long period of time. Don't touch those who need practice!! Anyway, wish you all the best, Roseann (from the UK, as is Leon)
tomliu
Posted
thank you so much for you information.
tom
tanya16569 chris1978
Posted
It seems we suffer from the same illness. I was wondering if there was any progress in your case? My name is Tanya and it feels as though I have been chasing my own tale trying to get what I feel are solid answers.
tanya16569 chris1978
Posted