Hemifacial Spasm

richard22091 sharon81449 · 2014-11-23T00:25+00:00

Sharon:

I live in the Atlanta area and am just starting to seek information re having my HFS diagnosed and treated. Can you tell me what clinic you have found in the ATL area that is well experienced in this condition. Many thanks, Richard.

susan61470 sharon81449 · 2014-11-24T01:30+00:00

Sharon what was your surgery recovery like?

camas sharon81449 · 2014-11-24T08:50+00:00

The surgery was not as bad as I had envisioned. Yes, the incision was longer that I thought that it would be and before i went to surgery I shaved my head at Super Cuts, but I only stayed home from work for approximately three months.

After over eight years of xonstant twitching, training myself to sleep on my rigt side, to exhausted at the end of the day to do anything, embarrassed to smile or talk in front of a group of people, smile in a picture with my two daughters, etc. The surgery was wort it.

Do you think that a neurologist would let a celebrity or politician go eight years without referring them to a surgeon?

richard22091 sharon81449 · 2014-11-24T12:32+00:00

Sharon:Thanks for sharing your experience. Are you in the U.S., and if so, would you mind telling us what clinic/surgeon you used? I'm just beginning a "surgeon search".

Many thanks,

Richard.

camas sharon81449 · 2014-11-24T19:42+00:00

Sharon, I am sorry about the misspelled words. My boss/friend and I flew over to Seattle to see a football game (American). The Seahawks beat the Cardinals, Yeah! So, I returned home late and took my contacts out before I posted my response.

The surgery was not as bad as I had envisioned. Yes, the incision was longer that I thought that it would be and before I went to surgery I shaved my head. I only stayed home from work for approximately three months to recuperate.

After over eight years of constant twitching, training myself to sleep on my right side, to exhausted at the end of the day to do anything, embarrassed to smile or talk in front of a group of people or smile in a picture with my two daughters, etc. ... the surgery was definitely worth it.

Do you think that a neurologist would let a celebrity or politician go eight years without referring them to a surgeon? No. They would have them in the surgery room as soon as they could schedule it. I really doubt if the physician would prescribe Tegretol (Carbamazepine), etc. Not one of the medications that all of the neurologists prescribed for me helped.

angela2490 sharon81449 · 2015-01-28T14:43+00:00

I have been Dx and suffering for 4 plus years. The entire side of my left is affected.... I've had the Botox injections which only leaves me looking disfigured..... This has taken a toll on me emotionally.... I'm in the public eye a lot and do speaking engagements and now my words are alurred and I also have trouble swallowing as well at times..... Does anyone know a surgeon or Dr that had performed the decompression close to the KY USA AREA? I'm willing to travel anywhere at this point.... What is the recovery time? As I'm a single mom of three?

Hemifacial Spasm

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