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Hemifacial Spasm

Posted , 45 users are following.

sharon81449
sharon81449

I have just been diagnosed with Hemifacial Spasms at the age of 46 - since suffering from daily fluttering in my left eye. Thankfully at this stage it is still only affecting the left eye (I have had this since May last year) and hasn't spread anywhere else. I am beside myself with panic that I am going to end up abnormally deformed and disfigured very soon as it does start to include the rest of the face. Can anyone give a complete novice regarding HFS some advice. I only got the letter yesterday and don't see my Consultant until April and I am out of my mind at the outlook prognosis and what to expect. Is it really going to leave me looking disfigured permanently?

1 like, 129 replies

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  • debbie72005
    debbie72005 sharon81449

    Posted

    Botox will stop the eye fluttering.  I suggest finding a Dr. who will work with you and who will start very conservativley!  Insurance should cover it

     

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