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I never knew such forum existed. I've been religiously reading many advice given from people who have experienced this same condition. If only I had found this site sooner.
Although I am lucky to have my symptoms come and go, my dad was not. For more than 6 years, I have watched my dad go from occasional twitching to practically having to live with it every second of the day. It progressed to the point where his vision started to blur and the whole left side of his face was being affected. Although we seeked out multiple physicians, no one was able to provide an answer for the cause. The only option was botox. The botox had helped his condition, but it had only lasted for a month. Soon after his symptoms had returned. I thought the reason for this symptom was due to stress since he was constantly working (12 hours a day 7 days a week).
Couple month ago we received information that this was common in Korea. After having a relative schedule a consultation and tentative surgery schedule (in case it was needed , my dad took 3 weeks off of work and left to Korea. After getting an mri and taking multiple tests, the neurologist confirmed that it was HFS. He stated that if sought out earlier, my dad would have been able to avoid surgery. However since his condition was severe, he would have to get surgery to have a 95 percent chance of recovery. Thus, the following day he received surgery.
Present: (4th day after surgery) twitching reappeared. Neurologist mentioned it would take up to 4 months to disappear.
Did not realize the severity of the surgery until 4 days ago when I was able to look up what the actual symptom and procedure was called.
For most people, after the surgery, they try to heal their body and change their lifestyle. But my dad is the type to just go back to his same stressful lifestyle. He believes 1 - 2 weeks is more than enough time to recover. And that he can't be away from work any longer. Especially since insurance does not cover the surgery.
For those who went through the surgery, is there any advice I can give him? Any post op exercise or dietary tips? And if stress was also a factor, any suggestions on how you were able to overcome it?
None of our intermediate family members are there with him... so there is no one who can restrict what he is doing. Other than the nurse or doctor. But apparently he was walking up and down the stairs to regain his strength as fast as possible. Is that safe ?
What can I possibly text him to have him reconsider the way he thinks? To have him take time off to fully recover?
How long does it usually take to recover from the surgery? To start working full time like my dad?
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