Hemipalgic Migraines

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I am 45 year old female that was diagnosed with Hemiplegic migraines 9 years ago. My headaches mic a stroke . Does anyone have them and what has helped you? My dr said there isnt enough research on them to really give me meds. to provent them.

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  • Posted

    Hi Stephanie, wondering if any drs had you try amitripyline or nortripyline for prevention? I am close to be diagnosed with vestibular migraine...have to go through balance testing first I have had chronic migraines and dizziness, neck pain, tingles, numbness, etc since perimenopause. Was on amit, then saw an otoneuro and he just switched me to nort.

    Curios as to why your dr said there's nothing...Is there a risk associated with certain meds with that type of migraine? I hope something can be done to find you some relief.

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    • Posted

      Yes , there are certain meds. you can not take for them. Like Zomig , etc. They did put me on all those you spoke about to no help. Now they have me on a calcium channel blocker. I am hoping to get an appointment with a specialist here in the States.

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  • Posted

    Hi Stephanie

    I suffer with Hemiplegic Migraines and was on Amitryptline which didn't help so took myself off them. Infact, have taken myself off all the meds that was given to me, and have noticed an improvement. The side effects I had with the meds was lots of neuro symptoms. I find stress, bright lights and loud noises can bring them on, the last one I had was at a club, the first time I had been to one in a long time. I was rushed into hospital for a suspected stroke as the hemiplegia affected my face in early November and the CT scan was clear, that's when I took myself off the meds, up to that point I had cluster ones for about two months. I was diagnosed nearly 3 years ago. I am playing the waiting game, to see if I have another one as am convinced the meds caused them, am hoping I am right (fingers crossed). I am so sorry to hear that you get them, they are awful, and people have no idea how scary they can be, especially with the numbness, stumbling and speech issues. I was recently passed a telephone number from someone on here, for a specialist in London, UK who knows about these, am happy to pass to you if you are in UK.

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  • Posted

    Hi Stephanie, HM is more common than Drs think and there are treatments for it. You are right that it mimics a stroke and its scary to say the least.

    Treatments are available and you can have Botox and a drug called Flunarizine. Get your Dr to refer you to Dr Matharu in London, you can see him privately or NHS.

    These treatments have been amazing for me!

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  • Posted

    Hi Stephanie I used to get these started at 14 and when I was pregnant with my daughter they became worse. Was put on sandomigran which helped a bit but my saving grade was my chiropractor. My neck was the trigger and it was out of alignment. Some adjustments and I was migraine free for 10 years. Had one a few months ago so I went back to the chiropractor. Have your neck checked it can't hurt but it could work for you too. Good luck and take care.

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