hemiplegic migraine

Hi, well my dizziness has been diagnosed as BPPV - great!! Got a 2 hour test with a specalist at the Ears, Nose & throat department soon...I can look up to my left but whenever I get out of bed I'm always unsteady on my feet and end up walking into a wall or the door....is this BPPV or a symptom of Helmiplegric migraines some say BPPV....

Hope everyone are having better days.

Sanddancer- I realize your post was a while back, but I just went through having a hemiplegic migraine myself. Absolutely terrible. I wanted to share a couple of things that have helped my tremendously.

One was using a heated flaxseed pilow on my neck and head. Another was supplementing with magnesium. I started with 200 millagrams and worked up to 800 per day during the times when I know I'm more suseptable to headaches. I also take the herb feverfew everyday. and have cut out dairy and wheat and chocolate ): from my diet. Also, Dr. Alexander Mauskop is a neurologist that is extremely helpful, compassionate and knowledgeable. If you google him he has several websites.

I can't believe how horrible the last 8 days were, and how little help I was able to get from the ER when I went there. They were very kind, but nothing that was done seemed to help much. I took a video of my thoughts about going through this...painful to look at ...I look so bad. Plan to put it up on you tube and document my recovery from this awful disease that I don't every want to experience again.

Hi all,

Im a fit 18 year old male and ever since i can remember i have always gotten migraines atleast 3 times a month. The older i get the worse they seem to be. I havent went to a doctor for them, i just wanted to talk to all you who have been diagnosed with hemiplegic migraines because i fear thats what i have.

About twenty minutes before my head starts hurting, i lose vision in my right eye and all of my perifeal vision, i also experence what i call tv fuzz, in my vision, i see what it looks like when your tv losses signal.

Lately i also experience numbess in my fingers and arms before and during my migraines.

I also usually get nauseous but never throw up.

A couple days ago, i lost ability to talk for about 2 hrs, like my mouth just couldnt quite form words but i never got a migraine. Im sorry if this is kind of scrambled and hard to follow but it is very hard to explain these kind of symptoms, as i have never tryed to explain them to any one before except for right now on this post. Thank you all for your time.

hillbillytom

I was wondering if any of my symptoms sounded to you guys like hemiplegic migraines?

Hi tom it sounds like you could possibly have H.M , you need to get checked out at hospital off a neuro specialist . I have it and trust me I pray you haven't ! . And all these people who have it the same will tell you . It is not easy to be diagnosed and you will need medication to help my life has changed dramatically and I suffer daily . So if you think you may have go get checked out .

Best of luck andy ...

Hi,

I just recently had a attack like this last Monday.

I'm a 26 year old girl having 4/5 migraines a month doctors have given me gabapentin and amitryptyline to take at night but I found that when I wake up in the morning I'm so tired!!

On Monday I had felt like I wanted to be sick, vision became blurry I thought this was due to my contact lense so I took them out after I went to get up and attend to my little I collapsed had a small seizure ;( after coming round I noticed a pain from my neck on the left side rushing down my body it started to tense my arm locked into my back, had numbness in my hand and feet, I couldn't move by this time I was so scared didn't know what to do.

My partner called the ambulance went to A&E had MRI, CT, ECG, CXR and scan on my veins in my neck all came back clear.....? Now I'm really terrified what is wrong with me? Got taken to a stroke ward. After 3 days my feelings started to come back to my left side and I could move my arm but not much movement in my legs have so much medication to take now:

Aspirin

Omeprazole

Lamotrigine

Clopidogrel

Also my gabapentin and amitryptyline

Doctors said I may have had H.M or TIA

Has anybody else experienced this....

Hi all

I've had 'normal' migraines since I was 6 but 3yrs ago (I'm 51) I started getting episodes of total paralysis with limb jerks (myoclonus), migrainous head pain, photosensitivity, face and head tingling/buzzing, etc lasting for up to 4hrs. I am unable to move or respond in any way except blink. Afterwards I'm drained, achy, it can take the whole day for me to recover, like with a migraine. Between episodes I have varying amounts of head pain, together with varying neurological symptoms (dizziness, face + head tingling/buzzing, afterimages, brain fog, jitteriness, eyelid twitching, altered sensations etc) and bouts of limb jerks.

I have been diagnosed with chronic migraine syndrome and told the paralysis is a "rare but known" symptom. I have trawled the internet and the only things I find about migraine and paralysis is HM, so I'm presuming that's what the neurologist meant - if so why didn't he say that? Does it fit at all in any of your opinions? I dismissed it originally because of the 'hemi-' one-sided part. But someone on another forum pointed me to the International Headache Society Classification which doesn't say one-sided, so I started looking at it again.

My meds have been gradually increased and now I'm on propanalol 160mg, nortriptyline 20mg and topiramate 100mg. But these episodes just keep increasing in frequency. In the first 12 months after they started I had 10 episodes - in January and February this year I had 9 each month and I've had 9 so far in March with 6 days still to go.

I'm waiting for an appointment back with Neuro, but just been told it'll be early June before I'm seen. Very fed up of it now - feel like I'm getting nowhere

Hi everyone-

I'm having a lot of the same kinds of symptoms that many of you have posted. Went to the ER and they did not think it was a stroke, it sure felt like one! ( Or at least what I've read about..I've also interviewed several people that have survived strokes for a radio show that I produce so definitely 'recognized' a lot of the same types of symptoms. )The Doctors did not see signs of a stroke on my MRI and at first thought it was migraine related, and now, more concerned about MS. It's been a month since my ER visit, and being the impossibly impatient, answer seeking person that I am I've been researching and reading. and this is what I am doing to recover, and I must say it has been remarkably effective for me so far. The crippling fatigue is gone, the brain fog ( although I would call it much more than brain fog when one has to stare at a calendar and try to decipher what the 'kind of' familiar days and names of the week mean...and what day and month we are in...etc....or staring at the computer and trying to remember just exactly what I was intending to do! ( And this is from a person that works as a Producer....organizing, scheduling etc....that kind of activity is usually 'easy' for me) My limbs no longer feel 'paralyzed or heavy'. The only symptoms I still have are a very sore neck and immobility of my neck and head and blurry vision. And occasional lapses of memory and fatigue. Okay, so this is what I've done so far.

Gotten back on a diet of mostly veggies,beans, whole grain rice, no dairy, very little wheat and avoiding processed foods.

Trying to eat wild caught salmon once a week and lean meat once in a while.

Have gotten back into taking supplements.

Here's what I'm taking. ( I don't have any financial or other interest in the brands that I'm listing...just thought I'd list them, as I trust the gal that recommended them to me.)

Source Naturals Mega One high potency multi vitamins 1 daily with food

Now sustained release C 1000 2 times a day with food

Jarrow Formula EPA-DHA Balance

Krebs magnesium- potassium chelates 250/100 2 times a day with food

Vitamin D3 5,000 once a day with food + 1 or 2 hours in the sun every day for the last 2 weeks

Jarrow Methyl B-12 1000 2 times a day

Vinpocetine 5 MG 2 times a day

Also following a heavy metal detox program of one lemon in hot water every morning.

Eating tons of green vegetables, including cilantro.

And taking epsom salt baths daily.

I am also doing gentle stretching daily. Yesterday I felt well enough to go to our local gym and join a very easy exercise class and use the sauna.

Am also looking into starting on LDN- low dose naltrexone, if they do DX MS.

I figure whether it's HM or MS or whatever, it all has to do with the circulatory system and nerves, and all of the above activities help with that. I plan to take exercising seriously once I get a bit more of my strength back. Anyway, wanted to share with you all what I'm doing, as for me it's really seemed to have helped a lot.

Looking forward to a DX and so appreciate every one on the internet sharing their experiences. It's been so helpful, so thanks to you all!

Triptans have not been shown to work on Hemiplegic Migraines. UptoDate has published the following known effective medications:

Abortive and preventive medications —

There are no randomized controlled trials of therapy specifically for hemiplegic migraine. However, there is limited evidence from case reports and small series regarding the use of verapamil, acetazolamide, flunarizine, ketamine, lamotrigine, and naloxone for the treatment of hemiplegic migraine:

These may be worth discussing with your GP or neurologist if you have not already tried.

Hi can anybody advise me. My 16yr old daughter has just had a hemplygic migraine. She has lost use in left side leg mainly.she has been like this for7days now. Could anyone tel me how long this can last as when i had one it took 3days. She is out of breath most of the time and the leg itself is stone cold and now swelling.

Any advice please

I was looking at all of the posts here saying that there is little information on HM. I volunteer for The Hemiplegic Migraine Foundation and Help With Hemiplegic Migraines. I was just wondering if you all were aware that there is a new study out on HM. You can find it at Up To Date. It was done by the Mayo Clinic and is peer reviewed. Some of our members have had great success when taking this with them to their doctor appointments. If you need me to help you get a copy of it, just let me know through my email.

Glenda Eakle