Hemithyroidectomy 1 year ago; depressed, angry and tired.

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Should have asked for community advice a long time ago as things have just gone from bad to worse. I don’t have my full blood work with me today, but a post is long overdue because I just feel so down.

My last TSH was 1.3 and since then I have upped my daily medication to 125mg Thyroxin (from 100) at my doctor’s recommendation to combat excessive weight gain.

1.3 TSH felt hyper for me and now I am sure I have gone too far as I am exhausted, have joint pain, am loosing heaps of hair, am angry and am depressed.

 

When I first became hyper the doctor misdiagnosed the symptoms as postpartum depression which was *****. But not long after that I could see a lump in my throat and I had a TSH of 14 and those symptoms were similar to the ones I have now.

I have been getting bloods every 6 weeks and the journey from hyper to hypo has been mostly about weight. But now I have exploded into unhappiness. I was on a T3/T4 combo and didn’t feel bad on that but stopped because I put on a lot of weight in the 8 weeks I was on it.

The best I felt was when I was on100mcg carbmizole to bring my TSH down from 14. This was heaven and I lost heaps of weight. It was only for 4 weeks and post operation my TSH was 5.4. I then went straight onto hypo treatment and haven’t been right since.

I honestly thought having more T4 would be good.

I just want to go off my medication for a while and be a good Mum to my small kids.

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10 Replies

  • Posted

    Hi m,

    Does your GP know how you are feeling?  With hormones, it can be really difficult to get the balance right, so it may take some time to find the medication and dose that is right for you, it probably just needs tweeking.

    Going off the medication completely may be just as bad, evedn if you are going the natural route.

    I would go back to your GP and see if it can be sorted out satisfactorily, but definitely let him know that is how you are feeling, hopefully he is sympathetic and will do his best to get you on an even keel.

    Good luck.  I really hope you can get this sorted and start to feel better.

    Marie

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    • Posted

      Hi Marie, Thanks for your response. My GP has been great. I do think it could be time to see some specialists and alterntive practioners :-/ 
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  • Posted

    I feel so sorry for & have thyroid problems myself ,not as bad as you I think though.GP's are generally not very good at treating thyroid but there is help out there if you know where to go.There is a book called Stop The Thyroid Madness which has lots of information about all aspects of thyroid disease.Its American but the stuff in there applies to all thyroid patients.There is also a brilliant group on facebook called Thyroid Problems UK-Patient To patient help & support.Please have a look its a closed group so you have to join but everyone on there is a thyroid sufferer & there is always someone to answer any questions you have ,many will have been where you are at the moment feeling dreadful. Please do not give up ,there are people who will help you probably not a GP unless you are lucky enough to find one who knows how to treat you.I self medicate now & feel 100% better than when on levothyroxine which piled weight on.Its a choice I made myself after feeling ill for over 10 years & I am lucky that even though my Dr will not prescribe NDT he does do my blood tests then I get a copy of the results & post them & someone in the group will tell me what they mean. Hope this helps a little.

     

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    • Posted

      Hi Brewster. When I get my new bloods in 2 weeks I will definately put them up to get some feedback. Its been a year, which I know isn't too bad, hopefully I can self medicate without becoming too hung up on my TSH. 

      Thanks for your response.

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    • Posted

      Your very welcome & hang in there,there is a revolusion about to explode I think because all us undertreated thyroid patients now have access to the Internet & are banding together to get things changed & to help others to cope with this devastating disease.It may not happen just yet but it will happen if we all stay together & while we help ourselves we will also be helping others.
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  • Posted

    hi m

    .....

    thats crazy ...at around 1.. you were perfect.

    anyway you re aiming to  get your tsh down...heard vit D3 and k2 together...or even just d alone ...is good for that.

    brewster hi!

    thanks so much for your help earlier...have been on the facebook i set up but don't otherwise use ...but can't see how to make contact with anyone or how to move around. would you try to say hi to me on there? xx

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    • Posted

      Hey Marey. I was hoping that T4 or T3 would be the solution. But I am going to try Vitamin D and K soon.  When I had my hemi I ordered a lot of books of Thyroid problems and I found a lot of the stuff of leptins, adrenals and hashi's really overwhealming.  Time to harden up and learn a bit more  :-)
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    • Posted

      keep coming back here to share what you're learning....its the best way to sort the info out ...to teach others!

      we're all in this together...you can do it. have you listened to the thyroid summit? that was amazing!

      yes i know what you mean!! but its kinda fun...you're dropping in all the cool words!!

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    • Posted

      Hi Marey,you just have to put a comment on any of the posts & someone will answer you.Have you put a bit about your problems so that they know about you.I presume you have had the welcome E-mail,if not you will get one & then they ask you to post a little about you & your thyroid.You just click on comment under whatever post you want to answer or ask about.I will look out for you xx
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