I'm currently a 19 year old female student in my 2nd year of my degree, during March 2012, I was diagnosed with Henoch Schonlein Purpura (HSP) after being sent to hospital with meningitis like symptoms. You can imagine the relief, when I found it it was not in fact meningitis. The symptoms of HSP (Rash, Swelling and Abdominal Pain) however, have interfered in my life a great deal, leaving me having to take a lot of time off work and my studies, which actually resulted in me being very ill for my end of year exams. Fortunately, I still managed to pass my first year at university.
These symptoms are causing a great stress in my life, and continuous hospital appoints are a constant pain.
As a 19 year old female, my appearance is very important to me, and I am struggling to keep a 'positive' face when I have to constantly cover up from my neck down, otherwise I am bombarded with questions and looks as though I am a freak of nature, on more than several occasions I have been very upset with this illness.
During my visits to the hospital, despite my kidneys being priority there (thankfully, they are still functioning fairly normal with little blood in my urine) the rash itself is one of my biggest problems.
I have been trying to find people in recent times with the same condition, but am struggling to do so, many discussion forums tend to be around the time of 2008, many of adults complaining that despite being told the symptoms would leave after 4 weeks, have been left with this illness permanently. This has brought me down even more, to discover that no one has been able to share their story of recovering from this frustrating illness.
I was hoping that by me bringing this up, hopefully someone with the same problem as me would be able to shed some light on to this, as doctors seem to be just as useless and clueless as me. I am in no position to say that this is the worst thing to ever happen, as I know others have it a lot worse, but I simply could not imagine leading a 'normal' life at my current rate, as for me, walking is an incredible difficultly for me, due to my massive ankles, knees and feet.
If anyone can help me, at all I would be extremely grateful.
I am on no current treatment, besides painkillers to reduce abdominal pains, and bed rest for swelling.
Thanks in advance x