Henoch-Schonlein Purpura, what should I do?

Posted , 7 users are following.

I'm 16, 17 soon (female) and was diagnosed in February this year with HSP (Henoch-Schonlein Purpura). My doctor told me that it's abnormal because its most common in boys and children. She told me if the rash comes back more than two or three times to go back as it could be a sign of something wrong with my kidneys. Since February the rash has come back atleast 8 times. I don't know whether to go back since I don't have it right now and feel as if I'm wasting doctor's time, however have noticed I've been needing to pee almost every 45 minutes since I first had it. What should I do?

0 likes, 7 replies

Report / Delete

7 Replies

  • Posted

    Hi Kayleigh my daughter has had this since jan and was only diagnosed in July . She was having weekly urine dipped and blood pressure to check and the went to monthly etc , so far her kidneys have been fine, thank goddess. Since joining this forum it does seem to can be common in adults , my daughter is only 10 and has been left with scars to her feet , I am now using bio oil on them . X 
    Report / Delete Reply
  • Posted

    Hi Kayleigh,

    If 'my doctor' means your GP then you need to get a referral to a specialist straight away. That is not necessarily because of something serious so don't start panicking but this condition is not something to be treated in the first instance by your local GP. My advice would be to go to a GP that will refer you into a teaching hospital and ask for a rheumatology specialist. If your practice won't refer (ours were very good with our daughter who is 16 also ) then personally I would just pop into A&E and talk with them. 

    You may already have the referral of course.

    Bye and take care,



    Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up