14 Replies

  • Posted

    Hi, I completed 12 wks of Havoni about a month ago. I don't go for a check up until next month, however I live in Australia and the government covers the cost ie we pay abou $38 a month or $6.20 if on welfare.

    I had no real side effects, maybe a bit of indigestion but I had that before treatment. I specifically chose not to read about the side effects until I was nearly finished, so I couldn't talk myself into them.

    Me: 52yrs, female, liver cancer survivor, stage 4 cirrhosis, fibroscan 29kpa, genotype 1b

    Report / Delete Reply
    • Posted

      Oh okay cool I commend you. It's not easy at all taking these medications. So with Harvoni you take just one pill a day is that correct? Was that the only medication you had to take for Hep C? Tomorrow I start my 12 week treatment and I'm done. I see my doctor this Tuesday even though it's my last week on the medication because I will be on vacation for three weeks and he wanted to see me after my 12 week treatment. Yes I too get indigestion and I feel horrible but some days are good, and some are not too good. Really nothing major where I can't tolerate but I can speak honestly I can't wait to get off these medications. My side effects are itching, restlessness, can't sleep or stay asleep many times. My breathing I can hear it at times, and with this heat going up the stairs I feel as if I'm gasping for air. Two times my legs/calves I woke up with cramping and that her something that I haven't experience since I had children many year ago. My stomach seems as if it's bloated and that's not a good look. I definitely don't feel like myself but I'm thankful and can't wait for this last week on Vierepak and Ribivarin

      Report / Delete Reply
    • Posted

      I had a HCC but was treated with the new TASE procedure in March 2015 - injected chemo in femoral artery up and straight into the liver lesion(2.8cm). Excruciatingly painful and was constantly being injected with Fentanyl each time they pushed in the chemo. My enzymes are a constant and have not been a good indicator of my cirrhosis or liver function. Hypoglycaemia, low platelet levels(52), enlarged spleen and pancreatitis with atrial fibrillation have been my symptoms. But then my alpha fetoprotein went from 12 to 400 very quickly - a marker for hcc. I get scans every 3 mths.

      I am expecting my next fibroscan to be much improved on my next visit to my specialist. I have had no follow up since finishing Harvoni. Done differently here in Oz.

      Report / Delete Reply
    • Posted

      Yes, and it is working. I just went to see my doctor today since I'm on my last week. He scheduled for me to do blood work so I'll go after I come from vacation. He told me to eat green vegetables, and red meat cause my iron was low according to last months blood work.

      Report / Delete Reply
    • Posted

      Wish you a successful treatment. Once you are free of HepC, you will feel much better. I have read that liver cirrhosis gets improved when the virus is gone (F3-F2). Drinking more water may help. smile

       

      Report / Delete Reply
    • Posted

      Thank you. I'm done with my treatment and have been for several months thank goodness. The blood work was not showing any detection of Hep C so I'm happy I go back for blood work again in 3 months that's what my doctor said so I'm cured. I'm happy cause it was really taking a toll of me so yeah now I do feel a whole lot better

      Report / Delete Reply
    • Posted

      Congrats! Yes, SVR12 (12 weeks after completion of treatment) is the standard. If you pass SVR12, you have 99% chance of cure. Some people test again at SVR24, the golden standard, 24 weeks after completion, just for a peace of mind.

      Best of luck for your next test!

       

      Report / Delete Reply
    • Posted

      Thank you so much. Yeah I feel a lot better. As I'm not worrying now like I was before, and my body is not feeling like before my treatment. I was so afraid cause the medicine was so strong and all the stuff I was reading about the medicine. It was very serious and unfortunately I was on my journey alone. They recommend that people at least have someone to go through it with you just to be there. But again I had no choice but I did it

      Report / Delete Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up