here goes again yet another course of steriods and A.Bi

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In March, April, May, June and now here again in September on these tabs again, its no good to much. start of the month hard to breathe then again had to go back had test for heart waited 2 weeks it was ok was given another inhaler no help so more time passed again,in the end found to have a bad chest infection . By then my percentage dropped to 39% from 76% which so made me feel awfull. In July went to docs again for answers and wanted help It was only then he knew it had fell so low and was surprised didnt know and my COPD nurse had went on sick and i was not giving another one. He gave me an all day inhaler to try and for the last 7 weeks it was the light at the end of the tunnel i was so happy out and walking again, but then out of nowhere breathless again and wheezy, mucus ect. I was so down again thought id get longer without this again i just had to go bk to the steriods and A.Bi, i dont want to as i know its not gd to so much but what else is there to do.  Why when you do everyting correct it happens so much ? i did ask him last time about the using e-cigs, and he sd it was ok as no tar or chemicals and i only use the lowest 6mg liquid so nothing that would clog up my lungs. i am so worried i mean i exercise, eat good, work when i can lately, now this year after having it 3 year with no problem it has just hit me hard.

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10 Replies

  • Posted

    Hi margaret i have only jsut found out i have this well think i have not 100% sure. but i have herd loads of people say that vaping can cause COPD not sure if that's true or not. I have done laods of reading on here and some people i know still smoke after 10 plus years of having this and hardly have any problems and then i read others who do everything correct and have one problem after another.

    Really hope your feeling better soon sorry i can't help more don't really no much myself.

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  • Posted

    Hi Margaret. I am rather similar to you in that in March, I was very poorly and had to call the Dr. in which is unheard of for me but I was given new inhalers etc. and I was put in touch with the Rocket team which put my mind at rest.  I lost a stone in weight and although I eat well etc. I haven't been able to put that weight back on.  However I have felt fine since until a couple of weeks ago when I started coughing in the night and getting more breathless during the day so I took the anti's and steroids which didn't work so I took a second course.  My Ventolin inhaler doesn't seem to help much.  I'm a bit better now but not as good as I was before and where this all came from, I've no idea unless it's my "dear husband" bringing in germs, I don't mix with people hardly at all, my choice and not because of COPD.  I am 70 now and and had my first ciggie 60 years ago and there's no way I can stop and I don't want to either (I know I am inviting much critisism here but it makes no difference, I know all this).  Maybe it's the unusual weather we've had this summer with all the humidity, I don't know but I just thought I'd let you know you are not alone and it's all blamed on smoking but there's so much other pollution around.  I now feel that I have deteriorated a bit and this is how I will stay until the next flare up.  My only consolation is my age and that I don't need to worry too much about the future.  I am now trying Turmeric tabs to see if it helps.

    God bless, do let us know if you hear of any useful tips, won't you?

     

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    • Posted

      I will do i had a phone call from my GP office to say my COPD nurse is now back and will give me a call tomorrow to talk about all i have been going thro this year.  I know that she will say i cant just go on steriods and antibiotics so much as she normally says that but when you are struggling to breathe and cant get out it is such a depressing way to live so if i have them in the house and they help then why struggle and also the way things went this year with them not helping when i kept going back, then taking forever for tests results ect i was put thro hell and my percentage fell to a serious level and in the end all i had to do was as i wanted to begin with, Simply take the bloody steriods and ABi as i knew i needed all along.  You know your own body and they say no ur fine it just is so bloody maddning.
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    • Posted

      Hi deanne they all say that stopping smoking is the best thing but it's so hard, can i ask how Turmeric tablets help please.

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    • Posted

      Hi John, you're right, they all say to stop smoking is the best thing and of course we all know it doesn't do any good to smoke, but stopping smoking doesn't cure COPD and there are many on this forum who have never smoked.  I don't think the medics have any answers other than anti bio's, steroids and inhalers.  I have seen several articles that say Tumeric is an anti-imflammatory as are steroids, also Garlic tablets are anti-inflam. antibiotic, antiviral, antivampire anti everything!!  So when I've finished this course of ant-bio's and the Hong Kong trots cease (lol) I shall try that course of action.  It's all natural stuff which must be better than drugs don't you think?  I get all that stuff from Naturesbest which is online and a good Britsh company.  I hope this works but it can't do any harm.  With very best wishes John and loads of empathy! xx

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    • Posted

      Thanks deanne for the reply i am new to all this and not sure which i have until i see the specialist at the hospital and ask him loads of questions because someone is going to tell me for 100%.

      But i will keep note all everything i read on here for future use. thanks again take care.

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    • Posted

      Good luck with the specialist John, please do let us know how you get on.  Don't let it all scare you, as I said, I'm 70 and still here!  May I ask how old you are?  How very roooood!!  God bless. xx

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    • Posted

      Yes sure i am 55 all i got told was i have emphysematous changes then had a lung test which i past but lower end of normal, my FEV on the online checker says 79% normal. i am still smoking but not much never have been a big smoker. BLF said mine is more likely the acid reflux that's done this.

      But to be honest it does scare me when i read how bad things can get or will get.

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  • Posted

    Hi Magaret,

    We seem to have nearly the same experince, with the on and off the steroids, A/B, different inhalers, copd nurse etc.

    And as you say about when you are struggling to breathe, and cant walk or go out, I dont care what I take, or even if shortens my life, as I am 72 but would rather have a, ''look forward to the day feeling'', than a, ''Oh God, not another rotten day starting, when I wake up in the morning''!!!!

    I have been in the hospital 3 times the past 9 months, and it just starts again after being discharged a few days later.

    Given a Nubelizer about 10 days ago, but not really any help. Doc came to see me last Friday, and I was put back on steroids again, 6 a day for 5 days, then ween down over the month.

    Problem is, after they have worn off, it all starts again, but admit I dont have a cough, or bring up mucus much.

    What is the name of the all day ihaler the daoc gave you, I have three athe moment, including the Ventolin which helps a little when gasping for air.

    I have e-cigs, but not the liquid vapour type, and chest consultant said, no proof it does any harm at the present time.

    Will finish this off later, as want to reply to a few other lovely people on here, as its my daughters birthday, and she will be due in 30 minutes.

    Take care, Ron.

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