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Long time crohns suffer, was lucky as had pretty much 20 years of remission )with the odd mini flare every now & then). This last year has been horrific. Multiple flares, azathiaprine didn’t work as damaged my liver so steroids steroids & more steroids. 4 inpatient stays, then developed Cushing’s & diabetes, got put on humira & my endiocrinologist reduce my steroids (which I’ve been on 7 mths now) as steroids were causing me real problems. Well now down to 5mg, and everything has flared up again 😞 Doesn’t look like the Humira has worked as month 5 now & been really poorly with the crohns & ESR/CRP Have raised (which is ironic as they usually stay normal even if on a major flare) and add to that liver messing up again! Now I don’t know where to go from here. I’m a single Mum of two (2&11) & it’s almost xmas and really don’t wanna be stuck in bed all over xmas 😢 I HATE this disease.. 30 years of it now & it doesn’t get any better 😞
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