Here we go again
Posted , 7 users are following.
I'm having another flare up. As most know, the pain in the pelvic floor takes your breath away.
Yesterday, a few times after urinating, when wiping there was a little blood and dark color on toilet tissue. Today, it seems to have stopped. I've had a hysterectomy many years ago.
The pain isn't as bad as before. I have an appointment with my doctor tomorrow.
Anyone ever have this? Also, I have no appetite while going through a flare up, anyone else?
Thank you
0 likes, 17 replies
Guest kerry58794
Posted
Kerry, are you talking blood vaginally? Have you started antibiotics? I was told during a flare from ER that if any blood came vaginally to come back in You might want to go to ER to be checked. Keep us posted. Pray you heal up fast!
kerry58794 Guest
Posted
Yes, vaginia. Last week I went to urgent care thinking I was suffering from a UTI, received an antibiotic for it. But as the week went on, realized it was a flare up. Doctor appt tomorrow. The 'spotting' has slowed down.
angela55814 kerry58794
Posted
Yes I always get blood and mucus with a flare. Also during a flare I lose my appetite completely. I believe this is pretty normal.
Keep to a bland diet for a couple days and steer away from fibre until you are completely better. Ive not had a flare now for 18 mths and I eat everything (my consultant said there was no need to cut out anything) I m on holiday soon and always worry I will get a flare then. Good Luck and hope you feel better soon.
angela55814 kerry58794
Posted
Looking at Crosado 8 reply. For me mucus and blood was from bottom not vagina
1231Pecan kerry58794
Posted
So sorry to read about the issues you're having. No, I have never had urinary difficulties after a DD flare up. And yes, I have experienced a loss of appetite during flare ups. Best.
albert_99155 kerry58794
Posted
I am a 37 year old male so my situation may be a bit different. I was diagnosed with diverticula about a year ago. Yes the pain is very bad and I experience a los of appetite and overall lack of any motivation. It is terrible. I’m at the point I want to explore surgical options. Have you explored any?
mjf3814 albert_99155
Posted
If you are in the USA, I suggest you follow the post by DanielBenjamin who is 41 and has explored surgical options, following 3 attacks of Diverticulitis in quick succession. It would seem that research shows that the younger you are with the first attack, the more likely you are to develop one of the rare but severe complications. If you are in the UK though you only get surgery for these life threatening complications or zero quality of life. Other countries have different protocols.
albert_99155 mjf3814
Posted
thank you for this. I do live th the US, right outside of Manhattan, I am 37 and have seen about 4 or 5 specialists on top of my internists. None of them gave me a surgical option but the zero quality of life is pretty much my situation anymore. To the point I think death is the only cure (not that I will do something like that).
mjf3814 albert_99155
Posted
Would I be right in thinking that since you were diagnosed a year ago, you have had multiple attacks of diverticulitis requiring medication and/or hospitalisation, are still in constant pain, have fear of eating, depression and scared to leave the house? If this is the case perhaps the time has come for you to actually ask for surgery.
I should say that I am not in general in favour of surgery, but there does come a time, particularly if you have been suffering constantly for a year. Most people recover from an attack within a few weeks or months but from your post, it seems this is not the case for you.
albert_99155 mjf3814
Posted
Wow, you are spot on accurate with what you just described! actually scary accurate lol like we know each other I don’t want to go anywhere or be around anyone. It all happened subconsciously too. For the past three years I would vacation in the summer and this year I have no desire to leave my “comfort zone.” I am married and feel like this is ruining both of our lives- which brings on the added stress. I agree that it is time to do something!
mjf3814 albert_99155
Posted
I am one of the lucky ones (if you can call it that with DD) who does not have complications. But I've learned a lot about the condition over 20+ years, and my GP said I actually knew more about it than her! I have had my times of rolling on the ground in agony, passing blood, constantly on the loo a dozen times or more a day. But no perforation, abscess or fistula - just infected inflamed diverticula, and recovery time was 4 weeks plus. sandiidhealthy and rhiannon500 are both posting at present, and they have both had surgery following serious complications. Worth reading their posts.
kerry58794
Posted
I live in USA. The appointment I have is with my primary doctor, I really don't think she can help me with this.
I found the doctor I had two years ago when I was diagnosed and had perforated bowel.
I'm going to call his office this morning and see if I can get an appointment.
I believe I might have a fistula. My friend had it and it sounds familiar.
Wish me luck.
Thank you
Rhiannon_5000 kerry58794
Posted
Kerry may i ask what makes you think it's a fistula? I have had bowel resection due to perforated bowel due to diverticulitis and have been left with urinary pain and issues.
kerry58794 Rhiannon_5000
Posted
Rhiannon, I've not had any surgery with the perforated bowel. My friend had what I'm experiencing and it sounds very similar. I have a 1:00 appointment with a gastro doctor today. She was recommended by the doctor who treated me two years ago. Hoping for answers.
Thank you
albert_99155 Rhiannon_5000
Posted
I'd be very interested in hearing about your surgeries as id like to explore those options as well.
Rhiannon_5000 albert_99155
Posted
Happy to help. I had an abscess due to diverticulitis so i had no choice but to have surgery. I had a bowel resection and had an iliiostomy bag for 3 months, and then s successful reversal. I doubt you would have a bag. Mine was a complicated case . My bowel functions perfectly well now. I have urinary problems but i think they are from previous gynacological surgeries . Feel free to ask any questions.
Rhiannon_5000 kerry58794
Posted
Kerry did you get any answers about your suspected fistula? I'm keen because i have a strong suspicion I may have one.