Hereditary Chronic pancreatitis

Transferring a person in an unstable medical state, that is dangerous, however once stabilized if possible transfer him to a metropolitan area closest to you that has research hospitals known for expertise in this area.

Is he eating? If so I wouldn’t. When I’m in the hospital they normally give me clear liquids only and heat packs. Pain medication doesn’t always work. Sometimes regular Tylenol is used for inflammation and it helps. Sometimes a different pain medication is needed because the body becomes used to the one given. Not very many doctors specialize in the pancreas nor do they understand chronic pancreatitis. I would recommend looking for a pancreas specialist. When he’s able to eat he should be eating six small meals instead of three big ones. Low fat foods and watch the sugar content too. I don’t know how much you have been told, so it’s hard to get a clear picture of what’s going on. 

Get him to a pancreatic specialist.  I spent 3.5 weeks in ICU in NY while on vacation.  They almost let me die.  My husband hired a plane to fly me to MUSC in Charleston, pancreatic institute.  They were surprised I was alive.  I had necrotizing pancreatitis.  I lost 50% of my pancreas due to the lack of knowledge by the NY Drs.  My life is forever changed.  

Praying for your son. 

I understand your concern, as others have said you need to get in touch with a doctor who specialises in the pancreas.  You haven't provided enough information for anyone to project what might be wrong, not that we're doctors, so other than support and some suggestions there's little we can offer.

You live in a small town and don't have confidence in the medical support your son is receiving so might I suggest that you contact your closest teaching hospital and ask to speak to a gastroenterologist who specialises in the pancreas.  If the hospital you contact doesn't have such a specialist on staff ask to speak to the head of gastroenterology and ask for a name of a pancreas specialist elsewhere and contact him/her for advice.

It isn't interfering or a too bold step so don't hesitate.  At the least the phone consult might result in the specialist speaking to the hospital where your son is to possibly advise them or order specific tests.  Obviously you may have to pay for the consult.

I hope you do this not only will it give you some peace of mind it might actually help your son.  Good luck.

 

I will keep you in my prayers. Good doctors, second and third opinions and family support is so important. I also believe in God and i don't believe that there is ever too much prayer for those in pain. A good gastroenterologist and pain doctor, I believe, are essential. I have had CP for over 14 years when i became pregnant and had my firs attack 5 months along. Our daughter is almost 14 and is happy, healthy and athletic. I finally had the big Whipple surgery in December of 2016. My pain is about 75% under control. I have endured all of this while trying to work full time as a psychologist for LA County. I thank God for my public sector job and medical benefits. Don't give up and remember nobody knows how yoyr son feels better than your son. Doctors' might be experts in their field, but your son is an expert of his symptoms and you are an expert at being his mom! Don't give up!