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Hey Cushie friends
Guess who just got out of the hospital (again!) After my Er visit I was told to go back on Tuesday for that cardio review (as I'm sure you remember my HR was 157 & they hooked me up to heart monitors). So I went in expecting to have an appointment with a cardiologist at 10am Tuesday, next thing I know I'm being admitted as pulse too quick again! Ugh! Spent 3 days in, cardiologists did echo (normal) and 24 tape (showed constant tachycardia). Basically my heart beats around 130 all the time! Cardios then decided it was all Cushing's related so wanted the endios to come see me. They ordered another overnight suppression test which again came back positive for Cushing's but are saying it's steroid related. Now my gastroenterologist doesn't think it is as it's come on too quickly?! So they decided to discharge me on basis I see endocrinologist & gastroenterologist as an outpatient asap & started me on dilatzeam (heart rate reducers) which have brought my hr down to about 115 so slightly better (yet I'm still out of breath & pain in chest).
I have these new swellings on my collar bone & the swelling on my neck is now making me gag that I can't lay down properly? Does any of my lovely support ladies (and men but think you're all ladies - correct me if I'm wrong), suffer with this gagging feeling, like someone's choking me constantly? It's making it really hard to sleep & im also kinda grunting & snoring really badly (which wakes me up - thank goodness I'm single lol!) .
Finally, on a slightly different topic a friend of mine contacted me recently seeing me going through all my struggles and she mentioned something called pheocrhomcytoma? It's similar to Cushing's & again really hard to pick up. So anybody struggling out there may be worth mentioning to their dr. I'm gonna mention it to the endio when I see them, and ask for a scan just to make sure that it is steroid related & not a adrenal issue...
Another long rant for a Sunday night, apologies as I write like I talk!!! 😂😂😂
Hope everyone's had a lovely symptom free weekend xxxx
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