1. Community
  2. Women's health
  3. Lichen Sclerosus

Hey!! I have a question

Posted , 5 users are following.

brianna45715
brianna45715

So I've suspected I've had LS for a few months now but I just got my biopsy done today. My gyn didn't know what it was she told me she thought it could be vertigo... So my question is: are they going to test for everything or are they going to test just what my doctor suspects it could be? I'm getting a little nervous because it's starting to get worse and I don't want everything to be all messed up I'm only 18 and I'm worried it'll mess everything up in my future

1 like, 9 replies

9 Replies

  • jeri24294
    jeri24294 brianna45715

    Posted

    Yikes....vertigo!!!  Think I'd be looking for another gyn!  Mine took one look and said it was LS.  He later did a biopsy that confirmed it.  Others on this forum suggest looking for a vulva specialist...I'm probably not right on the title.  Good luck to you.
    • brianna45715
      brianna45715

      Posted

      But do they only test for one skin disorder or do they check for multiple? Do you know?
    • Morrell1951
      Morrell1951 brianna45715

      Posted

      There's a very clear look (cross-section) to LS skin under the microscope. It's not like a blood test. The biopsy itself can trigger a flare, as any skin trauma can. It's called the Koebner effect.

      I'm going to recommend my supplementary oil because my sister used it on her psoriasis-flared face last night and just wrote: " I used it the second I saw it,  then after my shower and this morning.  A huge improvement."

      We had a young man (Liam) on here who used it on his LS and it really helped, so I started using it six months ago. I bought jojoba oil and pure frankincense essential oil and a 25 ml dropper bottle. (Total cost $60). I fill the dropper bottle almost full of jojoba oil and then and three or four drops of frankincense oil to the bottle. You can use it as much as you want. I bet it will help the biopsy heal quicker. Never use frankincense oil (or any essential oil) straight on your skin.

  • gill59695
    gill59695 brianna45715

    Posted

    I'm wth jeri, you need a new gyne. Vin 3 is to do with yor lady garden, while vertigo is likely to be middle ear! Where did he train! We need more female consultants.
  • gill59695
    gill59695 brianna45715

    Posted

    Phew! Thank godenss for that! But I thought vertiligo was cased by sunlight or low immune system or maybe I'm wrong.
    • brianna45715
      brianna45715 gill59695

      Posted

      I'm not sure. I read about it and it does have some similiar symptoms as LS... But I'm also susceptible to other skin conditions I think because I have really sensitive skin and I have eczema so I guess it could be anything but I'm pretty convinced it's LS
  • gill59695
    gill59695 brianna45715

    Posted

    Yes I have sensitive skin and psoriasis and I wondered if their was a connexion. I also have diabetes so that can cause sore itching if the sugar is high. Other people have commented that you need to watch your sugar intake which I definitely concur with.

    I live in the uk and have to use the NHS as LS is not coved by health insurance over here.  Once they diagnosed LS that was it! No advice, and no sympathy! The forum has been my godsend.

  • Bridge_of_Sighs
    Bridge_of_Sighs brianna45715

    Posted

    Hi brianna

    You'll find doctors' ignorance a common thread on here. I went to my doctor over and over again and in the end was told I was being a hypochondriac. I knew i was moving so waited a year till I had a new Doctor who diagnosed it at once, but then I had to argue with her to get  to the specialist clinic (vulval dermatology) because she wanted to treat me herself and even though she'd recognised it, I didn't have confidence in her. I got to the clinic, I've been twice, they say it's the most common complaint they see. I have to say they haven't been particularly helpful, not nearly as informative as this forum! and I'm sure I'm due another appointment which hasn't arrived yet, I hope they're not dismissing me, it's good to be kept an eye on. I found a good doctor in my practice but she's just leaving, so don't know what I'll do now.

    Stay on this forum, it's brilliant and you don't feel so alone. I'm in the UK by the way.

    I did have a period of marching into every pharmacist I passed and telling them about LS. I thought that the first point of call for anyone with itching or painful sex would be the pharmacy. I got brushed off a lot 'Oh yes we know all about it...' sort of thing. I did get through to a few of them, mostly young women who were shocked and said they'd look it up. If it stops even one woman going undiagnosed it'll be worth it.

    Best wishes Brianna, you're not alone on here.

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.