Hi all anyone have a problem with skin rash?
Posted , 5 users are following.
I have a really bad rash all over my body driving me crazy.
1 like, 17 replies
Posted , 5 users are following.
I have a really bad rash all over my body driving me crazy.
1 like, 17 replies
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sheryl37154 carmel70893
Posted
Chris8968 sheryl37154
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I must have missed it and am very interested since I have this issue so there is a point in repeating it. You can always ignore it if you aren't interested.
sheryl37154 Chris8968
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Chris8968 sheryl37154
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If you don't want to participate in this then ignore it. It is benifitting some of us. Why even comment on it?
sheryl37154 Chris8968
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Having had HH for 27 years, and as does my husband and my son, joined a HH association, started and ran a support group, do a lot of HH awareness projects, go to conferences and speak to researchers around the world, and searched and read profusely for answers, I could hardly say I am not interested. You should read up on what has already been submitted.
Chris8968 sheryl37154
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sheryl37154 Chris8968
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Chris, I got you confused with Carmel who had already asked this question on Moodiali's post who had asked this question too and there was already a lot of response.
You're right, it has been asked before and answered before. I would have thought that people would read what is already there before asking again, unless it does not answer their question. I will just ignore those repeaters from now on, as I guess they are not really interested in the knowledge/ responses that is already there.
Chris8968 sheryl37154
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You know what, I don't think anyone here appreciates this type of attitude. If you are not going to ad anything productive, don't comment. It doesn't matter if the question has been answered before.
sheryl37154 Chris8968
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carmel70893 Chris8968
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Hi Chris as I said I'm new to the site and might have been put off using it by Sheryl's response but I'm Irish and have a (fecking blistering) thick skin so I'll just carry on asking questions regardless. Thanks for your input and have a great weekend and Sheryl you have a great weekend too .
Chris8968 carmel70893
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carmel70893 Chris8968
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Chris8968 carmel70893
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I can remember it getting bad about 2 years ago but I had minor skin condition prior to that. I'm not sure when it started.
carmel70893 Chris8968
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Mine started about a year ago and has got worse over the year I have to give blood next week so am hoping it will improve after as I am convinced it's to do with the hemachromatosis, doctor say no but I don't agree with her. Thanks for taking the time to reply as I am only new to this site and MISSED any other discussions on this subject.
Chris8968 carmel70893
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I showed mine to the doctor and he said it most definitely could be because of hemochromatosis. A common symptom is skin bronzing. My skin didn't bronze. It turned into a flaky rash. Both are caused by excessive iron in the skin. My ferritin started at 1887. Weekly phlebotomies for 11 weeks it went down to 294. Unfortunately I haven't seen a change in my skin yet.
carmel70893 Chris8968
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peggy96967 carmel70893
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