Hi all, I first got pmr about8 years ago. Like others I ...
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Hi all, I first got pmr about8 years ago. Like others I felt rotten because of lack of sleep etc due to the pain. I am a plumber and I just could not due my job effectivly. Once diagnosed and treated with steroids , wonderfull ! But I, like every one else cannot get off them. I've put on a stone and a half. What I try to do is keep myself 'on the edge' but I regularly come unstuck when the symtoms flare up again. I get down to about 5 or 6 mg and then bang I have to go back to 10 or more. What I'd like to know is, IS THERE ANYONE OUT THERE WHO HAS BEATEN THIS, AND WHAT WAS YOUR EXPERIENCE.
Do we have to put up with it for the rest of our lives, I am now 62
and sometimes feel 82 Thanks for letting me moan, Jim. PS has anyone been given a disabled badge because of this. !
[i:5485d37bde]This message was automatically imported from the original Patient Experience[/i:5485d37bde]
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Margaret Wright.
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biddy
Posted
do have disabled sticker but not for PMR, however, have been given free audio books from library as cannot hold a book for long.
only know of one person who seems to be \"over it\" BUT have spoken to so many who are not and Dr does not have any patients who,ve beat it-------SO DEPRESSING [this thought and the actual thing] ;the for is that it is not trerminal but againsts-SO MANY-especially seeing many who are over 20 yrs older-Im 60-\" running around\" doing so much!!
mrs_k
Posted
Co-codamol are morphine based - check with your GP about dosage. I understand they can be as difficult to reduce after high dosage plus longterm usage.
I do not know if you are old enough to remember about Valium - given out like sweeties for depression and then they discover that they were addictive and some people where then on those tablets forever - other managed to come off them over long periods of time. It all depended how dosage and length of time taken.